Neuroendocrine tumor of stomach

Last reviewed March 21, 2026

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ORPHA:100075C16.9

Who is this for?

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2FDA treatments 1Active trials 21Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

Gastric NET Gastric neuroendocrine tumor NET of stomach GNET

Clinical phenotype terms— hover any for plain English:

BronchoconstrictionHP:4000007Carcinoid tumorHP:0100570Intermittent diarrheaHP:0002254Dermatological manifestations of systemic disordersHP:0001005Zollinger-Ellison syndromeHP:0002044HematemesisHP:0002248MelenaHP:0002249Bloody diarrheaHP:0025085Lack of bowel soundsHP:0030145Atypical pulmonary carcinoid tumorHP:0030446

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Mar 2026

VIGADRONE: New indication approved

FDAcompleted

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Mar 2026SABRIL: New indication approved

FDAcompleted

Mar 2026VIGAFYDE: New indication approved

FDAcompleted

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Mar 2026SABRIL: New indication approved

FDAcompleted

Mar 2026

VIGABATRIN: New indication approved

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

2 available

Cimetidine

CIMETIDINE· Chartwell RX, LLC

Short-term treatment of active benign gastric ulcer

View Details →FDA Label ↗

Everolimus

EVEROLIMUS· Breckenridge Pharmaceutical, Inc.

Adults with progressive, well-differentiated, non-functional neuroendocrine tumors (NET) of gastrointestinal (GI) origin that are unresectable, locally advanced or metastatic

View Details →FDA Label ↗

Clinical Trials

1 recruitingView all trials with filters →

Phase 31 trial

Octreotide Acetate and Recombinant Interferon Alfa-2b or Bevacizumab in Treating Patients With Metastatic or Locally Advanced, High-Risk Neuroendocrine Tumor

Phase 3

Active

PI: James C Yao (SWOG Cancer Research Network) · Sites: Mobile, Alabama; Fairbanks, Alaska +494 more

Specialists

21 foundView all specialists →

JY

James C Yao

Specialist

PI on 1 active trial

Active trials Directions Travel grants

DM

Daniel M Halperin, MD

HOUSTON, TX

Specialist

Carcinoid syndrome Functioning neuroendocrine tumor of pancreas Non-functioning neuroendocrine tumor of pancreas

PI on 2 active trials

Active trials Directions Travel grants

DM

Dan Zandberg, MD

BALTIMORE, MD

Specialist

Acquired cystic disease-associated renal cell carcinoma Cutaneous neuroendocrine carcinoma Neuroendocrine tumor of the rectum+1 more

PI on 2 active trials

Active trials Directions Travel grants

OM

Oliver Dorigo, MD

STANFORD, CA

Specialist

Adult hepatocellular carcinoma Malignant germ cell tumor of ovary Malignant non-epithelial tumor of ovary+3 more

PI on 1 active trial

Active trials Directions Travel grants

RM

Rohit Joshi, MD

PHOENIX, AZ

Specialist

Adenocarcinoma of ovary Epithelial tumor of anal canal Malignant epithelial tumor of ovary+5 more

PI on 1 active trial

Active trials Directions Travel grants

NM

Nina Merchant

Specialist

Adenoma of pancreas Cutaneous neuroendocrine carcinoma H syndrome+13 more

PI on 1 active trial

Active trials Directions Travel grants

JC

Jeremie Calais

LOS ANGELES, CA

Specialist

Adenocarcinoma of the cervix uteri Adenocarcinoma of the penis Cancer of unknown primary site+16 more

PI on 4 active trials

Active trials Directions Travel grants

LM

Lin Shen, MD

Specialist

Cancer of unknown primary site Carcinoma of esophagus Gastrointestinal stromal tumor+9 more

PI on 8 active trials1 Neuroendocrine tumor of stomach publication

Active trials Directions Travel grants

NM

Nawel Bourayou, MD

Specialist

Constitutional mismatch repair deficiency syndrome Cutaneous neuroendocrine carcinoma Hepatocellular adenoma+7 more

PI on 2 active trials

Active trials Directions Travel grants

GP

Gabriele Capurso, PhD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

DZ

Dan P Zandberg

BALTIMORE, MD

Specialist

Neuroendocrine neoplasm of esophagus Squamous cell carcinoma of the hypopharynx

PI on 2 active trials

Active trials Directions Travel grants

WS

Wu-Chou Su

Specialist

Adenoma of pancreas

PI on 1 active trial

Active trials Directions Travel grants

BM

Brendan C Visser, MD

STANFORD, CA

Specialist

Gastroenteropancreatic neuroendocrine neoplasm

PI on 1 active trial

Active trials Directions Travel grants

MM

Mojun Zhu, M.D.

ROCHESTER, MN

Specialist

Cutaneous neuroendocrine carcinoma Squamous cell carcinoma of the stomach

PI on 1 active trial

Active trials Directions Travel grants

TP

Tina Garyantes, PhD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

AP

Apostolia Tsimberidou, MD, PhD

HOUSTON, TX

Specialist

PI on 1 active trial

Active trials Directions Travel grants

GS

Giovanni Schinzari

Specialist

Bronchial neuroendocrine tumor Gastroenteropancreatic neuroendocrine neoplasm

PI on 1 active trial

Active trials Directions Travel grants

PM

Peter Kingham, MD

Specialist

Melanoma of soft tissue Neuroendocrine carcinoma of pancreas Neuroendocrine neoplasm of esophagus+3 more

PI on 1 active trial

Active trials Directions Travel grants

MP

María Argente Pla, M.D. Ph.D.

Specialist

Gastroenteropancreatic neuroendocrine neoplasm

PI on 1 active trial

Active trials Directions Travel grants

MP

María Isabel del Olmo García, M.D. Ph.D.

Specialist

Gastroenteropancreatic neuroendocrine neoplasm

PI on 1 active trial

Active trials Directions Travel grants

EW

Emily R. Winslow

NEWARK, DE

Specialist

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine tumor of stomach.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Neuroendocrine tumor of stomach

5 articles

FDA Approves VIGABATRIN

VIGABATRIN (VIGABATRIN) received FDA approval.

FDA Approves VIGABATRIN

VIGABATRIN (VIGABATRIN) received FDA approval.

FDA Approves VIGABATRIN

VIGABATRIN (VIGABATRIN) received FDA approval.

FDA Approves VIGABATRIN

VIGABATRIN (VIGABATRIN) received FDA approval.

FDA Approves VIGABATRIN

VIGABATRIN (VIGABATRIN) received FDA approval.

See all news about Neuroendocrine tumor of stomach →

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine tumor of stomach

Are there clinical trials for Neuroendocrine tumor of stomach?

Yes — 1 recruiting clinical trial is currently listed for Neuroendocrine tumor of stomach on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Neuroendocrine tumor of stomach?

21 specialists and care centers treating Neuroendocrine tumor of stomach are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Neuroendocrine tumor of stomach?

1 patient support program are currently tracked on UniteRare for Neuroendocrine tumor of stomach. See the treatments and support programs sections for copay assistance, eligibility, and contact details.