For the patients who have
waited long enough.

Our Mission

300 million people worldwide live with a rare disease¹. 95% of rare diseases have no FDA-approved treatment². The average family spends over $50,000 and waits more than five years for a correct diagnosis³.

UniteRare exists to close that gap. We aggregate fragmented information from Orphanet, ClinicalTrials.gov, FDA drug databases, and rare disease advocacy organizations — and make it navigable for patients and caregivers who have been navigating alone.

AI helps us surface relevant trials, generate insurance appeal letters, and match patients to specialists — but every output requires human review. Our platform is a tool, not a replacement for a healthcare provider.

Built in Westwood, Massachusetts

Our team brings lived experience with the rare disease diagnostic odyssey — years of misdiagnosis, insurance denials, and the near-impossible search for a specialist who has seen more than one or two cases of your condition.

We are building the platform we wish existed. Reach us at team@uniterare.com

Our Approach