What do you need help with?
Navigate directly to what you need most right now
Caregiver grants and financial assistance
Financial support programs specifically for rare disease caregivers
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Travel Grant Finder
Grants covering travel to specialist centers, clinical trial sites, and expert consultations.
Find travel grants →💊
Support Programs
Copay cards and patient assistance programs — often cover family caregivers too.
Browse programs →🏥
NORD Rare Disease Fund
National Organization for Rare Disorders provides direct patient and caregiver financial assistance.
Apply at NORD ↗ →🎗️
Family Caregiver Alliance
State-by-state resource guides and financial assistance programs for family caregivers.
Explore resources ↗ →Join the caregiver community
Connect with other rare disease caregivers who understand what you're going through.
Self-care and wellbeing for caregivers
You cannot pour from an empty cup. Your wellbeing matters too.
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Respite care ↗
Short-term relief for family caregivers. ARCH National Respite Network can help locate local resources.
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Caregiver wellness ↗
Caregiver Action Network offers peer support and burnout prevention resources designed for complex caregiving.
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NAMI caregiver resources ↗
Education programs and family support from the National Alliance on Mental Illness.
🆘 Crisis & mental health resources
Caregiver burnout is real. These resources are always here when you need them.