Epithelial tumor of anal canal

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ORPHA:424010
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2Active trials21Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Epithelial tumor of the anal canal is a type of cancer that starts in the cells lining the anal canal — the short tube at the end of the digestive tract where stool leaves the body. These tumors are sometimes called anal canal carcinomas or anal cancers. The most common type is squamous cell carcinoma, which grows from the flat skin-like cells that line much of the anal canal. Other types include adenocarcinoma (which starts in gland cells), and less commonly, small cell carcinoma or undifferentiated tumors. This cancer can cause symptoms like bleeding from the rectum, pain or pressure around the anus, itching, a lump or mass near the anal opening, and changes in bowel habits. Some people notice discharge or a feeling that the bowel is not fully empty. In early stages, symptoms can be mild and easy to mistake for common conditions like hemorrhoids, which sometimes delays diagnosis. Treatment depends on the type and stage of the tumor. Squamous cell carcinoma is often treated with a combination of radiation therapy and chemotherapy (called chemoradiation), which can cure many cases without surgery. Adenocarcinoma may require surgery. Advanced or recurrent cases may need immunotherapy or targeted drug treatments. With early detection, outcomes can be quite good, especially for squamous cell carcinoma.

Key symptoms:

Bleeding from the rectum or blood on toilet paperPain, pressure, or discomfort around the anusItching or irritation in the anal areaA lump, bump, or mass near the anusChanges in bowel habits, such as narrower stoolsFeeling like the bowel is not fully empty after going to the bathroomUnusual discharge from the anusSwollen lymph nodes in the groin areaUnintentional weight lossFatigue or tiredness

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
May 2023Collecting Blood and Tissue Sample Donations for Research for HIV/AIDS-Related Cancers

AIDS Malignancy Consortium

TrialRECRUITING
Dec 2015Study of Pembrolizumab (MK-3475) in Participants With Advanced Solid Tumors (MK-3475-158/KEYNOTE-158)

Merck Sharp & Dohme LLC — PHASE2

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Epithelial tumor of anal canal.

2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

2 recruitingView all trials with filters →
Phase 21 trial
Study of Pembrolizumab (MK-3475) in Participants With Advanced Solid Tumors (MK-3475-158/KEYNOTE-158)
Phase 2
Active
PI: Medical Director (Merck Sharp & Dohme LLC) · Age: 1899 yrs
Other1 trial
Collecting Blood and Tissue Sample Donations for Research for HIV/AIDS-Related Cancers
Actively Recruiting
PI: Jeff Bethony (AIDS Malignancy Consortium) · Sites: La Jolla, California; San Francisco, California +6 more · Age: 1899 yrs

Specialists

21 foundView all specialists →
BP
Björn Zackrisson, Professor
Specialist
PI on 1 active trial
SP
Sandip P Patel
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial
JM
Jamie N. Bakkum-Gamez, M.D.
ROCHESTER, MN
Specialist
PI on 2 active trials
BM
Brennan Spiegel, MD, MSHS
LOS ANGELES, CA
Specialist
PI on 1 active trial
SM
Scot C. Remick, MD
SCARBOROUGH, ME
Specialist
PI on 9 active trials
MP
Marie A Bakitas, PhD
LEBANON, NH
Specialist
PI on 1 active trial
EM
Elena Elimova, MD
HOUSTON, TX
Specialist
PI on 1 active trial
VM
Vivek Subbiah, MD
STANFORD, CA
Specialist
PI on 2 active trials
RM
Raymond Bergan, MD
CHICAGO, IL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Epithelial tumor of anal canal.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Epithelial tumor of anal canal

Disease timeline:

New recruiting trial: Gynecologic Extramammary Paget's Disease

A new clinical trial is recruiting patients for Epithelial tumor of anal canal

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What type and stage of anal canal tumor do I have, and what does that mean for my treatment options?,Is chemoradiation the right treatment for me, and what side effects should I expect?,Will I need surgery, and could that mean a permanent colostomy?,Should I be tested for HPV or HIV if I haven't been already?,Are there clinical trials I might be eligible for?,How often will I need follow-up scans and exams after treatment?,Should my family members be tested or screened for anything related to this diagnosis?

Common questions about Epithelial tumor of anal canal

What is Epithelial tumor of anal canal?

Epithelial tumor of the anal canal is a type of cancer that starts in the cells lining the anal canal — the short tube at the end of the digestive tract where stool leaves the body. These tumors are sometimes called anal canal carcinomas or anal cancers. The most common type is squamous cell carcinoma, which grows from the flat skin-like cells that line much of the anal canal. Other types include adenocarcinoma (which starts in gland cells), and less commonly, small cell carcinoma or undifferentiated tumors. This cancer can cause symptoms like bleeding from the rectum, pain or pressure around

How is Epithelial tumor of anal canal inherited?

Epithelial tumor of anal canal follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Epithelial tumor of anal canal typically begin?

Typical onset of Epithelial tumor of anal canal is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Epithelial tumor of anal canal?

Yes — 2 recruiting clinical trials are currently listed for Epithelial tumor of anal canal on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Epithelial tumor of anal canal?

21 specialists and care centers treating Epithelial tumor of anal canal are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.