Carcinoma of esophagus, salivary gland type

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ORPHA:418945C15.1C15.2C15.3
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2Active trials18Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Carcinoma of the esophagus, salivary gland type is a very rare cancer that starts in the esophagus — the tube that carries food from your mouth to your stomach. What makes this cancer unusual is that it looks and behaves like cancers normally found in the salivary glands (the glands in your mouth that make saliva), even though it grows in the esophagus. This type of tumor is sometimes called esophageal salivary gland-type carcinoma or minor salivary gland-type carcinoma of the esophagus. It is thought to arise from small glands in the lining of the esophagus that are similar to salivary glands. Because this cancer is so rare, it can be hard to diagnose and is often found at a later stage. Common symptoms include difficulty swallowing, unintentional weight loss, chest pain or discomfort, and a feeling that food is getting stuck. The cancer can affect any part of the esophagus. Treatment usually follows approaches used for other esophageal cancers and may include surgery to remove the tumor, radiation therapy, and chemotherapy. In some cases, targeted therapies may be considered depending on the specific tumor type. Because this is such a rare cancer, treatment decisions are often made by a team of specialists and may be guided by what works for similar salivary gland cancers found elsewhere in the body.

Also known as:

Key symptoms:

Difficulty swallowing (food or liquids feel like they get stuck)Unintentional weight lossChest pain or pressure behind the breastbonePersistent heartburn or acid reflux that does not improveHoarse voice or chronic coughRegurgitation of food or liquidFeeling of a lump or blockage in the throatLoss of appetiteFatigue and low energyVomiting or nausea

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events
Sep 2025DESTINY-PANTUMOUR04

AstraZeneca

TrialRECRUITING
Feb 2025A Study to Learn More About How Well Treatment With Sevabertinib (BAY 2927088) Tablets Works and How Safe it is in Participants Who Have a Solid Tumor With Mutations of the Human Epidermal Growth Factor Receptor 2 (HER2)

Bayer — PHASE2

TrialRECRUITING
Jan 2025A Phase 2 Study of Zanidatamab in Patients With HER2-expressing Tumors

Jazz Pharmaceuticals — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Carcinoma of esophagus, salivary gland type.

2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

2 recruitingView all trials with filters →
Phase 21 trial
A Phase 2 Study of Zanidatamab in Patients With HER2-expressing Tumors
Phase 2
Actively Recruiting
· Sites: Prescott, Arizona; Littleton, Colorado +19 more · Age: 1899 yrs
Other1 trial
DESTINY-PANTUMOUR04
Actively Recruiting
· Sites: Birmingham, Alabama; Casa Grande, Arizona +13 more · Age: 18130 yrs

Specialists

18 foundView all specialists →
KM
Kuaile Zhao, MD
Specialist
PI on 3 active trials
SM
Shivaani Kummar, MD
PORTLAND, OR
Specialist
PI on 5 active trials
JC
Jeremie Calais
LOS ANGELES, CA
Specialist
PI on 4 active trials
AM
Antonius Miller
Specialist
PI on 2 active trials79 Carcinoma of esophagus, salivary gland type publications
SM
Scot C. Remick, MD
SCARBOROUGH, ME
Specialist
PI on 9 active trials
KP
Kurt Fisher, MD, PhD
OMAHA, NE
Specialist
PI on 1 active trial
JM
Joanna Yang, M.D.
Specialist
PI on 1 active trial
SM
Shalini Makawita, MD
HOUSTON, TX
Specialist
PI on 1 active trial
LP
Lee Cranmer, MD, PhD
DUARTE, CA
Specialist
PI on 1 active trial
BF
Brian P. Monahan, MD, FACP
Specialist
PI on 1 active trial
JF
John T. Vetto, MD, FACS
PORTLAND, OR
Specialist
PI on 1 active trial
VM
Vivek Subbiah, MD
STANFORD, CA
Specialist
PI on 2 active trials
RM
Raymond Bergan, MD
CHICAGO, IL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Carcinoma of esophagus, salivary gland type.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Carcinoma of esophagus, salivary gland type

Disease timeline:

New recruiting trial: DESTINY-PANTUMOUR04

A new clinical trial is recruiting patients for Carcinoma of esophagus, salivary gland type

New recruiting trial: A Phase 2 Study of Zanidatamab in Patients With HER2-expressing Tumors

A new clinical trial is recruiting patients for Carcinoma of esophagus, salivary gland type

New recruiting trial: A Study to Learn More About How Well Treatment With Sevabertinib (BAY 2927088) Tablets Works and How Safe it is in Participants Who Have a Solid Tumor With Mutations of the Human Epidermal Growth Factor Receptor 2 (HER2)

A new clinical trial is recruiting patients for Carcinoma of esophagus, salivary gland type

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What stage is my cancer, and what does that mean for my treatment options?,Should my tumor be tested for specific genetic changes that might make me eligible for targeted therapy or a clinical trial?,Would you recommend getting a second opinion from a specialist center that has experience with rare esophageal tumors?,What are the goals of treatment — is it aimed at curing the cancer or controlling it?,How will treatment affect my ability to eat and swallow, and what support is available for that?,Are there any clinical trials I might be eligible for?,What signs or symptoms should prompt me to call you or go to the emergency room right away?

Common questions about Carcinoma of esophagus, salivary gland type

What is Carcinoma of esophagus, salivary gland type?

Carcinoma of the esophagus, salivary gland type is a very rare cancer that starts in the esophagus — the tube that carries food from your mouth to your stomach. What makes this cancer unusual is that it looks and behaves like cancers normally found in the salivary glands (the glands in your mouth that make saliva), even though it grows in the esophagus. This type of tumor is sometimes called esophageal salivary gland-type carcinoma or minor salivary gland-type carcinoma of the esophagus. It is thought to arise from small glands in the lining of the esophagus that are similar to salivary glands

How is Carcinoma of esophagus, salivary gland type inherited?

Carcinoma of esophagus, salivary gland type follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Carcinoma of esophagus, salivary gland type typically begin?

Typical onset of Carcinoma of esophagus, salivary gland type is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Carcinoma of esophagus, salivary gland type?

Yes — 2 recruiting clinical trials are currently listed for Carcinoma of esophagus, salivary gland type on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Carcinoma of esophagus, salivary gland type?

18 specialists and care centers treating Carcinoma of esophagus, salivary gland type are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.