Gallbladder neuroendocrine tumor | UniteRare Disease Library

Overview

Clinical phenotype terms— hover any for plain English:

Biliary tract neoplasmHP:0100574Neuroendocrine neoplasmHP:0100634Intermittent jaundiceHP:0001046CholecystitisHP:0001082Biliary tract obstructionHP:0005230Elevated alkaline phosphatase of hepatic originHP:0010638Extrahepatic cholestasisHP:0012334Chronic fatigueHP:0012432Elevated gamma-glutamyltransferase levelHP:0030948Neoplasm of the nervous systemHP:0004375Abnormal brain FDG positron emission tomographyHP:0012658

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Gallbladder neuroendocrine tumor.

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Clinical Trials

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No actively recruiting trials found for Gallbladder neuroendocrine tumor at this time.

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Specialists

14 foundView all specialists →

Margaret von Mehren

Specialist

Angiosarcoma Carcinosarcoma of the corpus uteri Carney complex+12 more

PI on 4 active trials1 Gallbladder neuroendocrine tumor publication

Active trials Directions Travel grants

Lisa Lancaster, M.D.

Specialist

Acute interstitial pneumonia Functioning neuroendocrine tumor of pancreas Functioning pituitary adenoma+4 more

PI on 4 active trials

Active trials Directions Travel grants

Camila MV Moniz, Doctor

SAN ANTONIO, TX

Specialist

Adenocarcinoma of the penis Chromophobe renal cell carcinoma Clear cell sarcoma of kidney+35 more

PI on 1 active trial

Active trials Directions Travel grants

Marybeth Hughes, MD

NORFOLK, VA

Specialist

Adenocarcinoma of the gallbladder and extrahepatic biliary tract Carcinoid syndrome Carcinoma of gallbladder and extrahepatic biliary tract+11 more

PI on 1 active trial

Active trials Directions Travel grants

Brennan Spiegel, MD, MSHS

LOS ANGELES, CA

Specialist

Adenocarcinoma of the anal canal Carcinoma of the anal canal Epithelial tumor of anal canal+6 more

PI on 1 active trial

Active trials Directions Travel grants

Scot C. Remick, MD

SCARBOROUGH, ME

Specialist

Acute lymphoblastic leukemia Adamantinoma Adenocarcinoma of the anal canal+59 more

PI on 9 active trials

Active trials Directions Travel grants

Scott Irwin, MD, PhD

Specialist

Adenocarcinoma of the anal canal Carcinoma of the anal canal Epithelial tumor of anal canal+7 more

PI on 2 active trials

Active trials Directions Travel grants

William Carson

Specialist

Adenocarcinoma of the anal canal Carcinoma of esophagus, salivary gland type Epithelial tumor of anal canal+14 more

PI on 3 active trials

Active trials Directions Travel grants

Kurt Fisher, MD, PhD

OMAHA, NE

Specialist

Carcinoma of esophagus, salivary gland type Duodenal neuroendocrine tumor Familial melanoma+10 more

PI on 1 active trial

Active trials Directions Travel grants

Ricardo Frago Montanuy

Specialist

Ileal neuroendocrine tumor Jejunal neuroendocrine tumor

PI on 1 active trial

Active trials Directions Travel grants

Jeffrey Wong

Specialist

Adult hepatocellular carcinoma Carcinoma of gallbladder and extrahepatic biliary tract Carcinoma of liver and intrahepatic biliary tract+6 more

PI on 1 active trial

Active trials Directions Travel grants

Jessica Yeh, Ph.D.

Specialist

PI on 1 active trial

Active trials Directions Travel grants

Daniel Bernstein

Specialist

Adenocarcinoma of the anal canal Adenocarcinoma of the gallbladder and extrahepatic biliary tract Brain-lung-thyroid syndrome+5 more

PI on 1 active trial

Active trials Directions Travel grants

John T. Vetto, MD, FACS

PORTLAND, OR

Specialist

Carcinoma of esophagus, salivary gland type Laryngeal neuroendocrine tumor Squamous cell carcinoma of the penis+1 more

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Gallbladder neuroendocrine tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Gallbladder neuroendocrine tumor

Disease timeline:

New recruiting trial: Prophylactic Cholecystectomy in Midgut NETs Patients Who Require Primary Tumor Surgery.

A new clinical trial is recruiting patients for Gallbladder neuroendocrine tumor

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Gallbladder neuroendocrine tumor

Which specialists treat Gallbladder neuroendocrine tumor?

14 specialists and care centers treating Gallbladder neuroendocrine tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.