Ileal neuroendocrine tumor

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:100078C17.2
Who is this for?
Show terms as
4Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Ileal neuroendocrine neoplasm

Clinical phenotype terms— hover any for plain English:

Small intestine carcinoidHP:0006722Dermatological manifestations of systemic disordersHP:0001005Intermittent diarrheaHP:0002254Increased serum serotoninHP:0003144Episodic vomitingHP:0002572Elevated serum acid phosphataseHP:0003148Gastrointestinal obstructionHP:0004796Functional intestinal obstructionHP:0005249Extrahepatic cholestasisHP:0012334Chronic fatigueHP:0012432Arterial occlusionHP:0025324Abnormal bowel soundsHP:0030142Intestinal fistulaHP:0100819
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Nov 2022Systemic Targeted Adaptive RadioTherapy of NeuroEndocrine Tumors.

Lund University Hospital — PHASE3

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Ileal neuroendocrine tumor.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Ileal neuroendocrine tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Ileal neuroendocrine tumor community →

Specialists

4 foundView all specialists →
SP
Scott Irwin, MD, PhD
Specialist
PI on 2 active trials
BM
Brennan Spiegel, MD, MSHS
LOS ANGELES, CA
Specialist
PI on 1 active trial
RM
Ricardo Frago Montanuy
Specialist
PI on 1 active trial
PC
Pernilla Asp, MD, Senior consultant
Gothenburg
Specialist

Rare Disease Specialist

1 Ileal neuroendocrine tumor publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Ileal neuroendocrine tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Ileal neuroendocrine tumorForum →

No community posts yet. Be the first to share your experience with Ileal neuroendocrine tumor.

Start the conversation →

Latest news about Ileal neuroendocrine tumor

Disease timeline:

New trial: Systemic Targeted Adaptive RadioTherapy of NeuroEndocrine Tumors.

Phase PHASE3 trial recruiting. 177Lu-DOTATOC

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Ileal neuroendocrine tumor

Which specialists treat Ileal neuroendocrine tumor?

4 specialists and care centers treating Ileal neuroendocrine tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.