Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
6 eventsNational Institute of Cardiology, Warsaw, Poland
Crinetics Pharmaceuticals Inc. — PHASE3
Queen Mary University of London — NA
M.D. Anderson Cancer Center — PHASE2
M.D. Anderson Cancer Center — EARLY_PHASE1
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
2 availableXermelo
indicated for the treatment of carcinoid syndrome diarrhea in combination with somatostatin analog (SSA) therapy in adults inadequately controlled by SSA therapy
Somatuline Depot
the treatment of adults with carcinoid syndrome; when used, it reduces the frequency of short-acting somatostatin analog rescue therapy
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resourcesTravel Grants
No travel grants are currently matched to Carcinoid syndrome.
Community
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Start the conversation →Latest news about Carcinoid syndrome
Disease timeline:
New recruiting trial: Carcinoid Syndrome Efficacy Study Featuring an Oral Daily Paltusotine Regimen
A new clinical trial is recruiting patients for Carcinoid syndrome
New recruiting trial: Fibrosis in Chronic and Delayed Myocardial Infarction
A new clinical trial is recruiting patients for Carcinoid syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Carcinoid syndrome
Are there clinical trials for Carcinoid syndrome?
Yes — 4 recruiting clinical trials are currently listed for Carcinoid syndrome on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Carcinoid syndrome?
25 specialists and care centers treating Carcinoid syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Carcinoid syndrome?
1 patient support program are currently tracked on UniteRare for Carcinoid syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.