Insulinoma

Last reviewed

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ORPHA:97279D37.7C25.4D13.7
Who is this for?
Show terms as
1Active trials17Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

Nonketotic hypoglycemiaHP:0001958Recurrent hypoglycemiaHP:0001988Zollinger-Ellison syndromeHP:0002044Abnormal rapid eye movement sleepHP:0002494Increased body weightHP:0004324
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jul 2018DOTATOC PET/CT for Imaging NET Patients

British Columbia Cancer Agency

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Insulinoma.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Other1 trial
DOTATOC PET/CT for Imaging NET Patients
Active
PI: Francois Benard, MD (BC Cancer) · Sites: Vancouver, British Columbia · Age: 18100 yrs

Specialists

17 foundView all specialists →
PM
Paul Thornton, MD
FORT WORTH, TX
Specialist
PI on 1 active trial
JY
James Yao
Specialist
PI on 2 active trials
TH
Timothy Hobday
ROCHESTER, MN
Specialist
PI on 2 active trials1 Insulinoma publication
PK
Pamela Kunz
NEW HAVEN, CT
Specialist
PI on 2 active trials2 Insulinoma publications
SM
Shaheen Shagufta, MD
Specialist
PI on 1 active trial
HP
Henry Pitot
ROCHESTER, MN
Specialist
PI on 2 active trials2 Insulinoma publications
JP
Julian R. Molina, M.D., Ph.D.
Specialist
PI on 1 active trial
FM
Francois Benard, MD
Specialist
PI on 3 active trials
SC
STEPHEN HAROLD, M.D.; MPH; CCRC
Specialist
PI on 1 active trial
RM
Ranganath Muniyappa, M.D.
Bethesda, Maryland
Specialist

Rare Disease Specialist

PI on 2 active trials
OM
OMAR BARAKAT, M.D
Specialist
PI on 1 active trial
BP
Bojan Kovacevic, MD, ph.d.
ORLANDO, FL
Specialist
PI on 1 active trial
DP
Damian Wild, MD, PhD
Specialist
PI on 1 active trial
AM
Ana Maria Arbelaez, MD, MSCI
SAINT LOUIS, MO
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Insulinoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Insulinoma

No recent news articles for Insulinoma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Insulinoma

Are there clinical trials for Insulinoma?

Yes — 1 recruiting clinical trial is currently listed for Insulinoma on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Insulinoma?

17 specialists and care centers treating Insulinoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.