Somatostatinoma

Last reviewed

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ORPHA:97283C17.0C25.4E16.8
Who is this for?
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20Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

SteatorrheaHP:0002570Neoplasm of the pancreasHP:0002894Hypochromic microcytic anemiaHP:0004840Gallbladder dysfunctionHP:0005609Chronic fatigueHP:0012432Neoplasm of the small intestineHP:0100833Intermittent jaundiceHP:0001046Intrahepatic cholestasisHP:0001406Abnormal abdomen morphologyHP:0001438
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Somatostatinoma.

View clinical trials →

No actively recruiting trials found for Somatostatinoma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Somatostatinoma community →

Specialists

20 foundView all specialists →
JY
James Yao
Specialist
PI on 2 active trials
TH
Timothy Hobday
ROCHESTER, MN
Specialist
PI on 2 active trials1 Somatostatinoma publication
SP
Sandip P Patel
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial
PK
Pamela Kunz
NEW HAVEN, CT
Specialist
PI on 2 active trials2 Somatostatinoma publications
SM
Shaheen Shagufta, MD
Specialist
PI on 1 active trial
MP
M. Sue O' Dorisio, MD, PhD
Specialist
PI on 1 active trial
HP
Henry Pitot
ROCHESTER, MN
Specialist
PI on 2 active trials2 Somatostatinoma publications
JP
Julian R. Molina, M.D., Ph.D.
Specialist
PI on 1 active trial
JE
Jennifer Eads
Kingman, Arizona
Specialist

Rare Disease Specialist

PI on 1 active trial
VS
Vaibhav Sahai
ANN ARBOR, MI
Specialist
PI on 1 active trial
EM
Eric BAUDIN, MD
Specialist
PI on 1 active trial
PM
Paul E Oberstein, MD
NEW YORK, NY
Specialist
PI on 1 active trial
SM
Shounak Majumder, MD
ROCHESTER, MN
Specialist
PI on 1 active trial
WM
Wolfram Samlowski, MD
LAS VEGAS, NV
Specialist
PI on 1 active trial
MK
Matthew H Katz
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Somatostatinoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Somatostatinoma

No recent news articles for Somatostatinoma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Somatostatinoma

Which specialists treat Somatostatinoma?

20 specialists and care centers treating Somatostatinoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.