Neuroendocrine tumor with other location

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ORPHA:100101
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19Specialists8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

8 events
May 2026Clinical Trial Evaluating the Biological Activity of a New Drug Identified as Prifetrastat (PF-07248144), Combined With Fulvestrant for the Treatment of Patients With Hormone Receptor Positive (HR+) and HER2 Negative (HER2-) Breast Cancer Extended to Other Organs.

UNICANCER — PHASE2

TrialNOT YET RECRUITING
Jan 2024AMT-253 in Patients With Advanced Solid Tumours

Multitude Therapeutics Inc. — PHASE1, PHASE2

TrialRECRUITING
Jul 2022A Phase I/II Study of DYP688 in Patients With Metastatic Uveal Melanoma and Other GNAQ/11 Mutant Melanomas

Novartis Pharmaceuticals — PHASE1, PHASE2

TrialACTIVE NOT RECRUITING
Nov 2018Serial Tumour Biopsies and Blood Biomarkers in Melanoma

The Christie NHS Foundation Trust

TrialRECRUITING
Jul 2017Study of the Selective PI3K-Beta Inhibitor GSK2636771 in Combination With Pembrolizumab in Patients With Metastatic Melanoma and PTEN Loss

M.D. Anderson Cancer Center — PHASE1, PHASE2

TrialACTIVE NOT RECRUITING
Feb 2017Study of Oral Azacitidine (CC-486) in Combination With Pembrolizumab (MK-3475) in Patients With Metastatic Melanoma

M.D. Anderson Cancer Center — PHASE2

TrialACTIVE NOT RECRUITING
Mar 2014Testing the Addition of Navitoclax to the Combination of Dabrafenib and Trametinib in People Who Have BRAF Mutant Melanoma

National Cancer Institute (NCI) — PHASE1, PHASE2

TrialACTIVE NOT RECRUITING
Jan 2004Spontaneous Regression in Metastatic Melanoma and Renal Cell Carcinoma

Indiana University

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Neuroendocrine tumor with other location.

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Clinical Trials

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No actively recruiting trials found for Neuroendocrine tumor with other location at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Neuroendocrine tumor with other location community →

Specialists

19 foundView all specialists →
AA
Andrea B Apolo
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 4 active trials
BP
BioNTech Responsible Person
Specialist
PI on 18 active trials
FZ
Fu Zhao
BROOKLYN, NY
Specialist
PI on 2 active trials78 Neuroendocrine tumor with other location publications
AS
Ann (Annie) W Silk
Los Angeles, California
Specialist

Rare Disease Specialist

PI on 1 active trial
PL
Pinan Liu
Specialist
PI on 2 active trials260 Neuroendocrine tumor with other location publications
SA
Srivandana Akshintala
WASHINGTON, DC
Specialist
PI on 1 active trial
EM
Ernest C. Borden, MD
Specialist
PI on 5 active trials
NM
Ning Zhong, MD
SEATTLE, WA
Specialist
PI on 2 active trials
MP
M. Sue O' Dorisio, MD, PhD
Specialist
PI on 1 active trial
MM
Michael Blue, MD
Specialist
PI on 3 active trials
GM
Gianni Bisogno, MD
Specialist
PI on 2 active trials
CM
Carl M Gay, MD,PHD
HOUSTON, TX
Specialist
PI on 1 active trial
AM
Anish Thomas, M.D.
Specialist
PI on 7 active trials
HP
Hussein Tawbi, MD, PhD
HOUSTON, TX
Specialist
PI on 3 active trials
SM
Stergios Moschos, MD
Chapel Hill, North Carolina
Specialist

Rare Disease Specialist

PI on 3 active trials
GM
George Cole Jr., MD
Specialist
PI on 1 active trial
PM
Peter Kingham, MD
Specialist
PI on 1 active trial
LP
Lorigan, Prof
Specialist
PI on 1 active trial
KF
Keith Flaherty
BOSTON, MA
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine tumor with other location.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Neuroendocrine tumor with other location

Disease timeline:

New recruiting trial: Serial Tumour Biopsies and Blood Biomarkers in Melanoma

A new clinical trial is recruiting patients for Neuroendocrine tumor with other location

New recruiting trial: AMT-253 in Patients With Advanced Solid Tumours

A new clinical trial is recruiting patients for Neuroendocrine tumor with other location

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine tumor with other location

Which specialists treat Neuroendocrine tumor with other location?

19 specialists and care centers treating Neuroendocrine tumor with other location are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.