Neuroendocrine neoplasm of appendix

Last reviewed March 21, 2026

🖨 Print for my doctor Advocacy Hub →

ORPHA:100079C18.1D37.3

Who is this for?

Show terms as

15Specialists 8Treatment centers

Where are you in your journey?

ℹ

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

Report missing data

Overview

Also known as:

NEN of appendix Appendiceal NEN Appendiceal neuroendocrine neoplasm

Clinical phenotype terms— hover any for plain English:

Intestinal carcinoidHP:0006723Functional intestinal obstructionHP:0005249Mechanical ileusHP:0010676Abdominal colicHP:0011848Bowel urgencyHP:0012701Abnormal bowel soundsHP:0030142Hypoactive bowel soundsHP:0030144Elevated serum acid phosphataseHP:0003148Protracted diarrheaHP:0004385Ileal adenocarcinomaHP:0030412Adenocarcinoma of the colonHP:0040276Primary hypercortisolismHP:0001579

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event

May 2023Value of Right-sided Hemicolectomy for Chldren With High-risk Neuroendocrine Tumors of the Appendix

Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Neuroendocrine neoplasm of appendix.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Neuroendocrine neoplasm of appendix at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Neuroendocrine neoplasm of appendix community →

Specialists

15 foundView all specialists →

RM

Roxana S. Dronca, MD

Jacksonville, Florida

Specialist

Rare Disease Specialist

Amyloidosis Carcinoid syndrome Malignant germ cell tumor of the vagina+7 more

PI on 3 active trials

Active trials Directions Travel grants

MM

Marybeth Hughes, MD

NORFOLK, VA

Specialist

Adenocarcinoma of the gallbladder and extrahepatic biliary tract Carcinoid syndrome Carcinoma of gallbladder and extrahepatic biliary tract+11 more

PI on 1 active trial

Active trials Directions Travel grants

RP

Rob Kimmerling, Phd

Specialist

Adenocarcinoma of the penis Epithelial tumor of the appendix Hepatocellular adenoma+8 more

PI on 1 active trial

Active trials Directions Travel grants

BM

Brennan Spiegel, MD, MSHS

LOS ANGELES, CA

Specialist

Adenocarcinoma of the anal canal Carcinoma of the anal canal Epithelial tumor of anal canal+6 more

PI on 1 active trial

Active trials Directions Travel grants

MP

Mark Stevens, Phd

Specialist

Adenocarcinoma of the penis Epithelial tumor of the appendix Hepatocellular adenoma+8 more

PI on 1 active trial

Active trials Directions Travel grants

SM

Scot C. Remick, MD

SCARBOROUGH, ME

Specialist

Acute lymphoblastic leukemia Adamantinoma Adenocarcinoma of the anal canal+59 more

PI on 9 active trials

Active trials Directions Travel grants

SP

Scott Irwin, MD, PhD

Specialist

Adenocarcinoma of the anal canal Carcinoma of the anal canal Epithelial tumor of anal canal+7 more

PI on 2 active trials

Active trials Directions Travel grants

WC

William Carson

Specialist

Adenocarcinoma of the anal canal Carcinoma of esophagus, salivary gland type Epithelial tumor of anal canal+14 more

PI on 3 active trials

Active trials Directions Travel grants

JP

Jennifer Johnson, MD, PhD

Specialist

Acquired cystic disease-associated renal cell carcinoma Adenocarcinoma of the anal canal Adenocarcinoma of the penis+19 more

PI on 6 active trials

Active trials Directions Travel grants

SC

Stacey Cohen

Specialist

Epithelial tumor of anal canal Epithelial tumor of the appendix Hepatocellular adenoma+2 more

PI on 1 active trial

Active trials Directions Travel grants

KM

Kanwal P Raghav, MD

HOUSTON, TX

Specialist

Adenocarcinoma of the penis Malignant germ cell tumor of the vagina Rare carcinoma of pancreas+8 more

PI on 1 active trial

Active trials Directions Travel grants

SM

Sakti Chakrabarti, MD

CLEVELAND, OH

Specialist

Camurati-Engelmann disease

PI on 2 active trials

Active trials Directions Travel grants

RM

Raymond Bergan, MD

CHICAGO, IL

Specialist

Adenocarcinoma of the anal canal Adenocarcinoma of the penis Brain-lung-thyroid syndrome+15 more

PI on 1 active trial

Active trials Directions Travel grants

VM

Vivek Subbiah, MD

STANFORD, CA

Specialist

Adenocarcinoma of the anal canal Adenocarcinoma of the penis Brain-lung-thyroid syndrome+16 more

PI on 2 active trials

Active trials Directions Travel grants

RM

Reto Kaderli, MD

Specialist

Familial hypocalciuric hypercalcemia

PI on 2 active trials

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine neoplasm of appendix.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Neuroendocrine neoplasm of appendixForum →

No community posts yet. Be the first to share your experience with Neuroendocrine neoplasm of appendix.

Start the conversation →

Latest news about Neuroendocrine neoplasm of appendix

Disease timeline:

New recruiting trial: Value of Right-sided Hemicolectomy for Chldren With High-risk Neuroendocrine Tumors of the Appendix

A new clinical trial is recruiting patients for Neuroendocrine neoplasm of appendix

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine neoplasm of appendix

Which specialists treat Neuroendocrine neoplasm of appendix?

15 specialists and care centers treating Neuroendocrine neoplasm of appendix are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.