Neuroendocrine tumor of the rectum

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:100081C20
Who is this for?
Show terms as
1FDA treatments20Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

BronchoconstrictionHP:4000007Carcinoid tumorHP:0100570HematocheziaHP:0002573TenesmusHP:0012702Bloody diarrheaHP:0025085Hypoactive bowel soundsHP:0030144Atypical pulmonary carcinoid tumorHP:0030446MelenaHP:0002249Increased serum serotoninHP:0003144Protracted diarrheaHP:0004385
Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Mar 2026Advanced Endoscopic Resections for Rectal Neoplasms

Jagiellonian University

TrialNOT YET RECRUITING
Jan 2026TheraSphere Japan Pre-Market Study

Boston Scientific Corporation — NA

TrialRECRUITING
Jan 2026Modified Double Snare Assisted EMR (mDS-EMR) VS ESD for Rectal Neuroendocrine Tumors Smaller Than 1cm

The Affiliated Nanjing Drum Tower Hospital of Nanjing University Medical School — NA

TrialNOT YET RECRUITING
Mar 2025A Phase I/ II Study of Fragmented Autoantigen Stimulated T-cell-immunotherapy Combined with Radiotherapy (FAST-CR)

Fengming Kong — EARLY_PHASE1

TrialNOT YET RECRUITING
Mar 2025Endoscopic Resection for Small Rectal Neuroendocrine Tumors

Guangdong Provincial People's Hospital — NA

TrialNOT YET RECRUITING
Sep 2022F-Tryptophan PET/CT in Human Cancers

Barbara Ann Karmanos Cancer Institute — PHASE1

TrialRECRUITING
Jun 2022Endoscopic Resection for Small Rectal Neuroendocrine Tumors

Nanfang Hospital, Southern Medical University — NA

TrialNOT YET RECRUITING
Jun 2019Study of IDE196 in Patients With Solid Tumors Harboring GNAQ/11 Mutations or PRKC Fusions

IDEAYA Biosciences — PHASE1, PHASE2

TrialRECRUITING
Jul 2018

Azedra Ultratrace: FDA approved

AZEDRA is indicated for the treatment of adult and pediatric patients 12 years and older with iobenguane scan positive, unresectable, locally advanced or metastatic pheochromocytoma or paraganglioma who require systemic anticancer therapy.

FDAcompleted
Jul 1999Evaluation for NCI Surgery Branch Clinical Research Protocols

National Cancer Institute (NCI)

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Azedra Ultratrace

Iobenguane I 131· Progenics Pharmaceuticals, Inc.Orphan Drug
AZEDRA is indicated for the treatment of adult and pediatric patients 12 years and older with iobenguane scan positive, unresectable, locally advanced or metastatic pheochromocytoma or paraganglioma w

AZEDRA is indicated for the treatment of adult and pediatric patients 12 years and older with iobenguane scan positive, unresectable, locally advanced or metastatic pheochromocytoma or paraganglioma who require systemic anticancer therapy.

No actively recruiting trials found for Neuroendocrine tumor of the rectum at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Neuroendocrine tumor of the rectum community →

Specialists

20 foundView all specialists →
KM
Kathryn Beal, MD
Specialist
PI on 1 active trial
MM
Margaret von Mehren
Specialist
PI on 4 active trials1 Neuroendocrine tumor of the rectum publication
JC
Jeremie Calais
LOS ANGELES, CA
Specialist
PI on 4 active trials
BM
Brennan Spiegel, MD, MSHS
LOS ANGELES, CA
Specialist
PI on 1 active trial
SM
Scot C. Remick, MD
SCARBOROUGH, ME
Specialist
PI on 9 active trials
KM
Keith Delman, MD
ATLANTA, GA
Specialist
PI on 1 active trial
DM
Denise Casey, MD
ROCHESTER, NY
Specialist
PI on 2 active trials
CP
Carmina Valle, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine tumor of the rectum.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Neuroendocrine tumor of the rectumForum →

No community posts yet. Be the first to share your experience with Neuroendocrine tumor of the rectum.

Start the conversation →

Latest news about Neuroendocrine tumor of the rectum

Disease timeline:

New recruiting trial: TheraSphere Japan Pre-Market Study

A new clinical trial is recruiting patients for Neuroendocrine tumor of the rectum

New recruiting trial: Lateral Pelvic Lymph Node Dissection for Rectal Neuroendocrine Neoplasms Undergoing Laparoscopic Total Mesenteric Excision

A new clinical trial is recruiting patients for Neuroendocrine tumor of the rectum

New recruiting trial: Evaluation for NCI Surgery Branch Clinical Research Protocols

A new clinical trial is recruiting patients for Neuroendocrine tumor of the rectum

New recruiting trial: Study of IDE196 in Patients With Solid Tumors Harboring GNAQ/11 Mutations or PRKC Fusions

A new clinical trial is recruiting patients for Neuroendocrine tumor of the rectum

New recruiting trial: F-Tryptophan PET/CT in Human Cancers

A new clinical trial is recruiting patients for Neuroendocrine tumor of the rectum

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine tumor of the rectum

Which specialists treat Neuroendocrine tumor of the rectum?

20 specialists and care centers treating Neuroendocrine tumor of the rectum are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Neuroendocrine tumor of the rectum?

1 patient support program are currently tracked on UniteRare for Neuroendocrine tumor of the rectum. See the treatments and support programs sections for copay assistance, eligibility, and contact details.