Lymphomatoid granulomatosis

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ORPHA:86869C83.8
Who is this for?
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24Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Lymphomatoid granulomatosis.

View clinical trials →

No actively recruiting trials found for Lymphomatoid granulomatosis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Lymphomatoid granulomatosis community →

Specialists

24 foundView all specialists →
PM
Paolo Caimi, MD
CLEVELAND, OH
Specialist
PI on 5 active trials
RN
Ryotaro Nakamura
Duarte, California
Specialist

Rare Disease Specialist

PI on 6 active trials
CD
Colleen Delaney
OLD GREENWICH, CT
Specialist
PI on 3 active trials
TM
Thomas E. Witzig, MD
ROCHESTER, MN
Specialist
PI on 9 active trials
SS
Sonali Smith
CHICAGO, IL
Specialist
PI on 5 active trials130 Lymphomatoid granulomatosis publications
RP
Roberto Pili
WILLIAMSVILLE, NY
Specialist
PI on 2 active trials
AP
Alex A. Adjei, MD, PhD
ROCHESTER, MN
Specialist
PI on 3 active trials
SM
Shaji K. Kumar, MD
ROCHESTER, MN
Specialist
PI on 5 active trials
AW
Ann Woolfrey
SEATTLE, WA
Specialist
PI on 5 active trials
OP
Oliver W. Press, MD, PhD
SAN LUIS OBISPO, CA
Specialist
PI on 4 active trials
TM
Tom R. Fitch, M.D.
GLENDALE, AZ
Specialist
PI on 1 active trial
PM
Paul Armistead, MD
CHAPEL HILL, NC
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Lymphomatoid granulomatosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Lymphomatoid granulomatosis

No recent news articles for Lymphomatoid granulomatosis.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Lymphomatoid granulomatosis

Which specialists treat Lymphomatoid granulomatosis?

24 specialists and care centers treating Lymphomatoid granulomatosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.