Hepatosplenic T-cell lymphoma

Last reviewed March 21, 2026

🖨 Print for my doctor Advocacy Hub →

ORPHA:86882C86.1

Who is this for?

Show terms as

24Specialists 8Treatment centers

Where are you in your journey?

ℹ

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Hepatosplenic T-cell lymphoma.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Hepatosplenic T-cell lymphoma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Hepatosplenic T-cell lymphoma community →

Specialists

24 foundView all specialists →

AM

Amir Mortazavi, MD

COLUMBUS, OH

Specialist

PI on 1 active trial

Active trials Directions Travel grants

AH

Alex F Herrera

Specialist

ALK-negative anaplastic large cell lymphoma ALK-positive anaplastic large cell lymphoma Classic Hodgkin lymphoma+10 more

PI on 7 active trials

Active trials Directions Travel grants

DM

David Maloney

Specialist

Acute lymphoblastic leukemia Acute mast cell leukemia Acute myeloid leukemia+65 more

PI on 11 active trials

Active trials Directions Travel grants

AG

Ajay Gopal

SEATTLE, WA

Specialist

Adult T-cell leukemia/lymphoma Aggressive B-cell non-Hodgkin lymphoma B-cell chronic lymphocytic leukemia+8 more

PI on 14 active trials

Active trials Directions Travel grants

PM

Paolo Caimi, MD

CLEVELAND, OH

Specialist

Acute erythroid leukemia Acute lymphoblastic leukemia ADULT syndrome+28 more

PI on 5 active trials

Active trials Directions Travel grants

SM

Steven Horwitz, MD

Specialist

Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia Aggressive primary cutaneous T-cell lymphoma+22 more

PI on 4 active trials

Active trials Directions Travel grants

JM

Jonathan Moreira, MD

CHICAGO, IL

Specialist

Angioimmunoblastic T-cell lymphoma Extranodal nasal NK/T cell lymphoma

PI on 2 active trials

Active trials Directions Travel grants

TM

Thomas E. Witzig, MD

ROCHESTER, MN

Specialist

Acute lymphoblastic leukemia Aggressive B-cell non-Hodgkin lymphoma Aggressive NK-cell leukemia+21 more

PI on 9 active trials

Active trials Directions Travel grants

RL

Robert Lowsky

STANFORD, CA

Specialist

B-cell chronic lymphocytic leukemia Best vitelliform macular dystrophy Myeloproliferative neoplasm+1 more

PI on 5 active trials

Active trials Directions Travel grants

GC

George Chen

Specialist

Acute myeloid leukaemia with myelodysplasia-related features Acute myeloid leukemia with recurrent genetic anomaly Acute radiation syndrome+28 more

PI on 2 active trials

Active trials Directions Travel grants

ML

Matthew A Lunning

OMAHA, NE

Specialist

ALK-negative anaplastic large cell lymphoma ALK-positive anaplastic large cell lymphoma Angioimmunoblastic T-cell lymphoma+1 more

PI on 1 active trial

Active trials Directions Travel grants

YM

Yeow Tee Goh, MBBS MMed

Specialist

Enteropathy-associated T-cell lymphoma NK-cell enteropathy

PI on 1 active trial

Active trials Directions Travel grants

YO

Yasuhiro Oki

HOUSTON, TX

Specialist

Acute undifferentiated leukemia Aggressive NK-cell leukemia Angioimmunoblastic T-cell lymphoma+5 more

PI on 1 active trial

Active trials Directions Travel grants

WM

Wan-Jen Hong, MD

STANFORD, CA

Specialist

Aggressive NK-cell leukemia Aggressive primary cutaneous T-cell lymphoma Enteropathy-associated T-cell lymphoma+7 more

PI on 1 active trial

Active trials Directions Travel grants

PB

Paul Barr

FORT GRATIOT, MI

Specialist

B-cell chronic lymphocytic leukemia

PI on 2 active trials

Active trials Directions Travel grants

HL

Hongtao Liu

MADISON, WI

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent Acute myeloid leukemia with 11q23 abnormalities Acute undifferentiated leukemia+12 more

PI on 4 active trials

Active trials Directions Travel grants

SH

Sandra Horning

WATERTOWN, NY

Specialist

Aggressive B-cell non-Hodgkin lymphoma Anaplastic large cell lymphoma Angioimmunoblastic T-cell lymphoma+1 more

PI on 1 active trial1 Hepatosplenic T-cell lymphoma publication

Active trials Directions Travel grants

PP

Pierluigi Porcu

PHILADELPHIA, PA

Specialist

Acute mast cell leukemia Aggressive NK-cell leukemia Angioimmunoblastic T-cell lymphoma+4 more

PI on 2 active trials

Active trials Directions Travel grants

SK

Shaji Kumar

Anchorage, Alaska

Specialist

Rare Disease Specialist

Acute undifferentiated leukemia Adult T-cell leukemia/lymphoma Anaplastic large cell lymphoma+27 more

PI on 7 active trials

Active trials Directions Travel grants

PM

Patrick A. Thompson, MD

Specialist

Anaplastic oligoastrocytoma Bone sarcoma Fibrillary astrocytoma+13 more

PI on 2 active trials

Active trials Directions Travel grants

JG

John Gerecitano

NEW YORK, NY

Specialist

Acute undifferentiated leukemia Extranodal nasal NK/T cell lymphoma Lymphomatoid granulomatosis

PI on 1 active trial

Active trials Directions Travel grants

BM

Brian Hill, MD

Specialist

Aggressive NK-cell leukemia Epstein-Barr virus-associated malignant lymphoproliferative disorder Extranodal nasal NK/T cell lymphoma+5 more

PI on 1 active trial

Active trials Directions Travel grants

JS

John Sarantopoulos

SAN ANTONIO, TX

Specialist

Aggressive NK-cell leukemia Epstein-Barr Virus-associated carcinoma Large granular lymphocyte leukemia+1 more

PI on 1 active trial2 Hepatosplenic T-cell lymphoma publications

Active trials Directions Travel grants

AW

Ann Woolfrey

SEATTLE, WA

Specialist

Acute mast cell leukemia Acute radiation syndrome Adult T-cell leukemia/lymphoma+66 more

PI on 5 active trials

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Hepatosplenic T-cell lymphoma.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Hepatosplenic T-cell lymphomaForum →

No community posts yet. Be the first to share your experience with Hepatosplenic T-cell lymphoma.

Start the conversation →

Latest news about Hepatosplenic T-cell lymphoma

No recent news articles for Hepatosplenic T-cell lymphoma.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Hepatosplenic T-cell lymphoma

Which specialists treat Hepatosplenic T-cell lymphoma?

24 specialists and care centers treating Hepatosplenic T-cell lymphoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.