Large granular lymphocyte leukemia

Last reviewed March 21, 2026

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ORPHA:512034

Who is this for?

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18Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Large granular lymphocyte leukemia.

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Clinical Trials

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No actively recruiting trials found for Large granular lymphocyte leukemia at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Large granular lymphocyte leukemia community →

Specialists

18 foundView all specialists →

BS

Brenda Sandmaier

SEATTLE, WA

Specialist

Acquired idiopathic sideroblastic anemia Acute mast cell leukemia Acute myeloid leukaemia with myelodysplasia-related features+27 more

PI on 17 active trials

Active trials Directions Travel grants

DM

David Maloney

Specialist

Acute lymphoblastic leukemia Acute mast cell leukemia Acute myeloid leukemia+65 more

PI on 11 active trials

Active trials Directions Travel grants

RN

Ryotaro Nakamura

Duarte, California

Specialist

Rare Disease Specialist

Acute mast cell leukemia Acute panmyelosis with myelofibrosis Aggressive NK-cell leukemia+28 more

PI on 6 active trials

Active trials Directions Travel grants

SM

Steven Horwitz, MD

Specialist

Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia Aggressive primary cutaneous T-cell lymphoma+22 more

PI on 4 active trials

Active trials Directions Travel grants

EM

Elizabeth Fox, MD

Specialist

Acute biphenotypic leukemia Acute lymphoblastic leukemia Acute mast cell leukemia+35 more

PI on 5 active trials

Active trials Directions Travel grants

NR

Nancy Wells, DNSc, RN

Specialist

Acute biphenotypic leukemia Acute mast cell leukemia Acute undifferentiated leukemia+38 more

PI on 2 active trials

Active trials Directions Travel grants

GC

George Chen

Specialist

Acute myeloid leukaemia with myelodysplasia-related features Acute myeloid leukemia with recurrent genetic anomaly Acute radiation syndrome+28 more

PI on 2 active trials

Active trials Directions Travel grants

YO

Yasuhiro Oki

HOUSTON, TX

Specialist

Acute undifferentiated leukemia Aggressive NK-cell leukemia Angioimmunoblastic T-cell lymphoma+5 more

PI on 1 active trial

Active trials Directions Travel grants

HL

Hongtao Liu

MADISON, WI

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent Acute myeloid leukemia with 11q23 abnormalities Acute undifferentiated leukemia+12 more

PI on 4 active trials

Active trials Directions Travel grants

WM

Wan-Jen Hong, MD

STANFORD, CA

Specialist

Aggressive NK-cell leukemia Aggressive primary cutaneous T-cell lymphoma Enteropathy-associated T-cell lymphoma+7 more

PI on 1 active trial

Active trials Directions Travel grants

JS

John Sarantopoulos

SAN ANTONIO, TX

Specialist

Aggressive NK-cell leukemia Epstein-Barr Virus-associated carcinoma Hepatosplenic T-cell lymphoma+1 more

PI on 1 active trial2 Large granular lymphocyte leukemia publications

Active trials Directions Travel grants

PP

Pierluigi Porcu

PHILADELPHIA, PA

Specialist

Acute mast cell leukemia Aggressive NK-cell leukemia Angioimmunoblastic T-cell lymphoma+4 more

PI on 2 active trials

Active trials Directions Travel grants

TM

Thomas A Waldmann, M.D.

Specialist

Acquired cystic disease-associated renal cell carcinoma Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia+3 more

PI on 5 active trials

Active trials Directions Travel grants

BM

Brian Hill, MD

Specialist

Aggressive NK-cell leukemia Epstein-Barr virus-associated malignant lymphoproliferative disorder Extranodal nasal NK/T cell lymphoma+5 more

PI on 1 active trial

Active trials Directions Travel grants

AW

Ann Woolfrey

SEATTLE, WA

Specialist

Acute mast cell leukemia Acute radiation syndrome Adult T-cell leukemia/lymphoma+66 more

PI on 5 active trials

Active trials Directions Travel grants

TM

Tom R. Fitch, M.D.

GLENDALE, AZ

Specialist

Acute mast cell leukemia Aggressive NK-cell leukemia B-cell prolymphocytic leukemia+16 more

PI on 1 active trial

Active trials Directions Travel grants

PM

Paul Armistead, MD

CHAPEL HILL, NC

Specialist

Acute biphenotypic leukemia Acute mast cell leukemia Acute undifferentiated leukemia+40 more

PI on 1 active trial

Active trials Directions Travel grants

MM

Minoti Hiremath, MD

Specialist

Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia Burkitt lymphoma+19 more

PI on 2 active trials

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Large granular lymphocyte leukemia.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Large granular lymphocyte leukemia

No recent news articles for Large granular lymphocyte leukemia.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Large granular lymphocyte leukemia

Which specialists treat Large granular lymphocyte leukemia?

18 specialists and care centers treating Large granular lymphocyte leukemia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.