Overview
AL Amyloidosis is treated with 1 medication in our database, including Vyndaqel, Vyndamax. Medications are manufactured by Pfizer. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for AL Amyloidosis treatment below.
Also known as:
Clinical phenotype terms— hover any for plain English:
Sporadic
Usually appears on its own, not inherited from a parent
Adult
Begins in adulthood (age 18 or older)
FDA & Trial Timeline
10 eventsUniversity Hospital, Angers — NA
GlaxoSmithKline — PHASE2
Kedrion S.p.A. — PHASE3
Sinocelltech Ltd. — PHASE3
Peking University People's Hospital — PHASE2
Shanghai Chia Tai Tianqing Pharmaceutical Technology Development Co., Ltd. — PHASE1, PHASE2
Fondazione IRCCS Policlinico San Matteo di Pavia
Fondazione IRCCS Policlinico San Matteo di Pavia
Gracell Biotechnologies (Shanghai) Co., Ltd. — PHASE1
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
1 availableVyndaqel, Vyndamax
* Patient Copay Amount: As little as $0 per month * Maximum Annual Benefit Limit: $10,000-$60,000 per calendar year * Core Eligibility Restrictions: Patients must have commercial insurance and be resi
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersResearch Site
📍 Los Angeles, California
👤 AstraZeneca Clinical Study Information Center
Stanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🏥 NORDBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
Travel Grants
5 grantsPAN Foundation Amyloidosis copay grant
PAN Foundation
Applicants must be receiving treatment for amyloidosis in the U.S. and have government-insured health coverage for their medication. Eligible patients must also have a household income at or below 500% of the Federal Poverty Level.
The Assistance Fund (TAF) Amyloidosis Financial Assistance Program
The Assistance Fund provides financial assistance to patients and families facing high out-of-pocket medical costs for copayments, coinsurance, and deductibles. Eligibility is generally based on having a diagnosis for a covered disease and demonstrating financial need for health-related expenses.
WAINUA Way Patient Support Program
WAINUA Savings Program
Community
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Start the conversation →Latest news about AL amyloidosis
Disease timeline:
New recruiting trial: A Cohort Study of Plasma Cell Disorders (PCDs) in PKUFH
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Observational Study of Neurofilament Light Chain (NfL) as a Biomarker in Asymptomatic Carriers of the Transthyretin (TTR) Variants and Patients With Hereditary Transthyretin-mediated (hATTR) Amyloidosis With Polyneuropathy
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Registry for Adults With Plasma Cell Disorders (PCD's)
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Teclistamab-Daratumumab in AL Amyloidosis
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Study of NXC-201 CAR-T in Patients With Light Chain (AL) Amyloidosis
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Molecular Imaging of Primary Amyloid Cardiomyopathy
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Investigating the Pathogenic Role of N-glycosylation in AL Amyloidosis: Molecular Bases, Diagnosis, and Treatment
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: A Phase 1b/2 Study of CAR T Cell Therapy Targeting CD19 and BCMA in Participants With Relapsed or Refractory AL Amyloidosis.
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Prospective Study of Teclistamab in the Treatment of Systemic AL Amyloidosis
A new clinical trial is recruiting patients for AL amyloidosis
New recruiting trial: Exploratory Clinical Study on the Safety and Efficacy of Targeted BCMA Autologous CART Cell Injection in Subjects With Recurrent/Refractory Light Chain Amyloidosis
A new clinical trial is recruiting patients for AL amyloidosis
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about AL amyloidosis
What is AL amyloidosis?
AL Amyloidosis is treated with 1 medication in our database, including Vyndaqel, Vyndamax. Medications are manufactured by Pfizer. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for AL Amyloidosis treatment below.
How is AL amyloidosis inherited?
AL amyloidosis follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does AL amyloidosis typically begin?
Typical onset of AL amyloidosis is adult. Age of onset can vary across affected individuals.
Are there clinical trials for AL amyloidosis?
Yes — 20 recruiting clinical trials are currently listed for AL amyloidosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat AL amyloidosis?
25 specialists and care centers treating AL amyloidosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for AL amyloidosis?
1 FDA-approved treatment are currently tracked on UniteRare for AL amyloidosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.