AL amyloidosis Advocacy Hub | UniteRare

At a Glance

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Regulatory Watchboard

10 events

May 2026Evaluation of Skin Tests in Biotherapy Allergies

University Hospital, Angers — NA

TrialNOT YET RECRUITING

Mar 2026A Study to Evaluate the Efficacy and Safety of Belantamab Mafodotin in Combination With Cyclophosphamide, Bortezomib, and Dexamethasone in Adult Participants With Newly Diagnosed Amyloid Light Chain (AL) Amyloidosis

GlaxoSmithKline — PHASE2

TrialNOT YET RECRUITING

Feb 2026A Study Investigating Coagadex in the Treatment AFXD Associated With AL Amyloidosis

Kedrion S.p.A. — PHASE3

TrialRECRUITING

Jan 2026A Study to Evaluate the Safety and Efficacy of SCTC21C in Combination With Bortezomib, Cyclophosphamide, and Dexamethasone in Patients With Newly Diagnosed Systemic Light-Chain Amyloidosis (NDSLCA)

Sinocelltech Ltd. — PHASE3

TrialRECRUITING

Jan 2026Sonrotoclax Plus Dexamethasone With or Without Daratumumab Regimen in Patients With t(11;14) Primary AL Amyloidosis

Peking University People's Hospital — PHASE2

TrialNOT YET RECRUITING

Dec 2025Assessment of the Efficacy and Safety of Injectable TQB2934 (Subcutaneous Injection) in Systemic Light Chain Amyloidosis Patients

Shanghai Chia Tai Tianqing Pharmaceutical Technology Development Co., Ltd. — PHASE1, PHASE2

TrialRECRUITING

Nov 2025One Gene, Two Diseases: the Pathologic Role of IGLV1-44 in AL Amyloidosis and POEMS

Fondazione IRCCS Policlinico San Matteo di Pavia

TrialRECRUITING

Nov 2025Investigating the Pathogenic Role of N-glycosylation in AL Amyloidosis: Molecular Bases, Diagnosis, and Treatment

Fondazione IRCCS Policlinico San Matteo di Pavia

TrialRECRUITING

Nov 2025Teclistamab-Daratumumab in AL Amyloidosis

Suzanne Lentzsch, MD — PHASE2

TrialRECRUITING

Oct 2025Study of GC012F, CAR-T Therapy Targeting CD19 and BCMA in Chinese Participants With Relapsed or Refractory AL Amyloidosis

Gracell Biotechnologies (Shanghai) Co., Ltd. — PHASE1

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

12 programs

FINANCIAL LANDSCAPE SUMMARY

Total programs

Open now

Travel grants

Travel Grants12

Amyloidosis Disease Fund

PAN Foundation

Contact for detailsApply ↗

Amyloidosis Financial Assistance Program - The Assistance Fund

The Assistance Fund

OpenContact for detailsApply ↗

Amyloidosis Foundation Patient Assistance Resources

Amyloidosis Foundation

Contact for detailsApply ↗

Amyloidosis medication copay grant - PAN Foundation

PAN Foundation

OpenContact for detailsApply ↗

PAN Foundation Amyloidosis copay grant

PAN Foundation

ClosedUp to $7K/yrApply ↗

PAN Foundation Amyloidosis Copay Grant

PAN Foundation

ClosedUp to $7K/yrApply ↗

PAN Foundation Amyloidosis Disease Fund

PAN Foundation

ClosedUp to $7K/yrApply ↗

PAN Foundation Amyloidosis Patient Assistance Grant

PAN Foundation

ClosedUp to $7K/yrApply ↗

The Assistance Fund - Amyloidosis Financial Assistance Program

The Assistance Fund

Contact for detailsApply ↗

The Assistance Fund (TAF) Amyloidosis Financial Assistance Program

OpenContact for detailsApply ↗

WAINUA Savings Program

Contact for detailsApply ↗

WAINUA Way Patient Support Program

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Clinical Trial Landscape

59 active trials

6Phase 3

17Phase 2

7Phase 1

7N/A

13Unknown

8PHASE1, PHASE2

1EARLY_PHASE1

59Total recruiting

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Recent News & Research

No recent news articles indexed yet for AL amyloidosis.
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Specialist Network

Top 6 by expertise

Heather Landau, MD, M.D

Memorial Sloan Kettering Cancer Center

📍 NEW YORK, NY

Score 344 trials

Raymond Comenzo, MD, MD

Tufts Medical Center

📍 BOSTON, MA

Score 304 trials

Jin Lu

Peking University People's Hospital

Score 84 trials

Debra Barton, RN, PhD, AOCN, FAAN

University of Michigan

Score 64 trials

Philip L. McCarthy, MD

Roswell Park Cancer Institute

Score 67 trials

John A. Glaspy, MD, MPH, MD

Jonsson Comprehensive Cancer Center

📍 LOS ANGELES, CA

Score 63 trials

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Financial Assistance

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