Epstein-Barr Virus-related tumor

Last reviewed March 21, 2026

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ORPHA:289638

Who is this for?

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14Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

EBV-related tumor

Orphanet ↗NORD ↗

FDA & Trial Timeline

4 events

Feb 2026Safety and Tolerability of IDO-1 Inhibition in the Prevention of EBV-related Pathology in EBV Negative Kidney Transplant Recipients Receiving an Organ From EBV Positive Donors

University Hospital, Basel, Switzerland — PHASE2

TrialNOT YET RECRUITING

Jan 2026Application of mRNA Immunotherapy Technology in EB Virus Related Diseases

Xinqiao Hospital of Chongqing — EARLY_PHASE1

TrialNOT YET RECRUITING

Feb 2023Application of mRNA Immunotherapy Technology in Epstein-Barr Virus-related Refractory Malignant Tumors

West China Hospital — PHASE1

TrialACTIVE NOT RECRUITING

Nov 2020LANDscape MApping of Epitopes and T Cell Receptors for Selected Cancers

University Health Network, Toronto

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Epstein-Barr Virus-related tumor.

View clinical trials →

Clinical Trials

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No actively recruiting trials found for Epstein-Barr Virus-related tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Epstein-Barr Virus-related tumor community →

Specialists

14 foundView all specialists →

NM

Neil M Stevens, MD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

MM

Mary Horowitz, MD, MS

CHICAGO, IL

Specialist

Acute mast cell leukemia Aplastic Anemia Burkitt lymphoma+9 more

PI on 10 active trials

Active trials Directions Travel grants

EM

Elias Jabbour, MD

HOUSTON, TX

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent B-lymphoblastic leukemia/lymphoma with t(9;22)(q34.1;q11.2)Body integrity dysphoria+7 more

PI on 12 active trials

Active trials Directions Travel grants

HM

Helen E Heslop, MD

HOUSTON, TX

Specialist

Camurati-Engelmann disease Embryonal tumor of neuroepithelial tissue Embryonal tumor with multilayered rosettes+6 more

PI on 6 active trials

Active trials Directions Travel grants

NR

Nancy Wells, DNSc, RN

Specialist

Acute biphenotypic leukemia Acute mast cell leukemia Acute undifferentiated leukemia+38 more

PI on 2 active trials

Active trials Directions Travel grants

SM

Shivaani Kummar, MD

PORTLAND, OR

Specialist

Adenocarcinoma of the penis Adenocarcinoma of the small intestine Adrenocortical carcinoma+64 more

PI on 5 active trials

Active trials Directions Travel grants

LM

Leo Gordon, MD

Specialist

Adult T-cell leukemia/lymphoma Nodular lymphocyte predominant Hodgkin lymphoma

PI on 3 active trials1 Epstein-Barr Virus-related tumor publication

Active trials Directions Travel grants

JP

James L. Rubenstein, MD, PhD

Specialist

Acute lymphoblastic leukemia B-cell chronic lymphocytic leukemia B-cell non-Hodgkin lymphoma+20 more

PI on 2 active trials

Active trials Directions Travel grants

AW

Ann Woolfrey

SEATTLE, WA

Specialist

Acute mast cell leukemia Acute radiation syndrome Adult T-cell leukemia/lymphoma+66 more

PI on 5 active trials

Active trials Directions Travel grants

WM

Wen Long Nei, MD

Specialist

Rare head and neck tumor Rare otorhinolaryngologic disease Rare otorhinolaryngologic tumor+1 more

PI on 1 active trial1 Epstein-Barr Virus-related tumor publication

Active trials Directions Travel grants

MM

Minoti Hiremath, MD

Specialist

Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia Burkitt lymphoma+19 more

PI on 2 active trials

Active trials Directions Travel grants

LM

Lene Ugilt, MD

Specialist

Hemophagocytic syndrome Langerhans cell histiocytosis Non-Langerhans cell histiocytosis

PI on 1 active trial1 Epstein-Barr Virus-related tumor publication

Active trials Directions Travel grants

CR

Charles S. Rabkin

ROCKVILLE, MD

Specialist

HIV-associated cancer Human herpesvirus 8-related disorder Immunodeficiency-associated lymphoproliferative disease+1 more

PI on 1 active trial

Active trials Directions Travel grants

CP

Chantal Le Guellec, PharmD, PhD

Specialist

Diffuse large B-cell lymphoma of the central nervous system

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Epstein-Barr Virus-related tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Epstein-Barr Virus-related tumor

Disease timeline:

New recruiting trial: LANDscape MApping of Epitopes and T Cell Receptors for Selected Cancers

A new clinical trial is recruiting patients for Epstein-Barr Virus-related tumor

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Epstein-Barr Virus-related tumor

Which specialists treat Epstein-Barr Virus-related tumor?

14 specialists and care centers treating Epstein-Barr Virus-related tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.