Body integrity dysphoria

Last reviewed March 21, 2026

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ORPHA:623789F45.2

Who is this for?

Show terms as

26Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

BID BIID Body integrity identity disorder

Clinical phenotype terms— hover any for plain English:

Limb muscle weaknessHP:0003690Herniation of intervertebral nucleiHP:0008441Abnormal eating behaviorHP:0100738SchizophreniaHP:0100753

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events

Mar 2026A Study Exploring Changes in a Variety of Biomarkers Following Dosing With MT1988 in Participants at Clinical High Risk for Psychosis

Monument Therapeutics Limited — PHASE1, PHASE2

TrialRECRUITING

Nov 2025To Determine the Effect of CYP Induction Following Administration of Nirogacestat in Healthy Adult Male Participants

SpringWorks Therapeutics, Inc. — PHASE1

TrialRECRUITING

Aug 2025BID LTM Digital Intervention in Aging

University of California, San Francisco — NA

TrialRECRUITING

Jul 2025Efficacy and Safety of 186 mcg of OPN-375 Nasal Spray Twice a Day (BID) in Adolescents With Chronic Rhinosinusitis Without Nasal Polyps

Optinose US Inc. — PHASE3

TrialRECRUITING

Jun 2025Single and Twice-daily Dosing of Ramipril on Renal Function in Chronic Kidney Disease Patients With Reduced Ejection Fraction Heart Failure

Evi Liliek Wulandari — PHASE4

TrialRECRUITING

Feb 2025Efficacy and Safety of Nitazoxanide 600 Mg in the Outpatient Treatment of COVID-19 and Influenza

Azidus Brasil — PHASE3

TrialNOT YET RECRUITING

Dec 2024LIDRISE Study: A Phase 3 Study on the Efficacy and Safety of STN1013800 (Oxymetazoline HCl 0.1% Eye Drops, Single Dose) in the Treatment of Acquired Blepharoptosis.

Santen SAS — PHASE3

TrialRECRUITING

Sep 2024Safety, Tolerability, and Systemic Exposure of Apo-Si- K170A-C76 in Healthy Volunteers

Interna Therapeutics Ltd. — PHASE1

TrialACTIVE NOT RECRUITING

Jun 2024Randomized Study Using SM-030 Gel for Adults With Melasma

DermBiont, Inc. — PHASE2

TrialRECRUITING

Feb 2024VTE Incidence After Rivaroxaban + Aspirin or SAPT After Lower-limb Revascularization

Science Valley Research Institute — PHASE4

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Body integrity dysphoria.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Body integrity dysphoria at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Body integrity dysphoria community →

Specialists

Showing 25 of 26View all specialists →

GB

Gabriella Bottini

Specialist

4 Body integrity dysphoria publications

Directions Travel grants

KR

Kathy Ruddy

SUMMIT, NJ

Specialist

3 Body integrity dysphoria publications

Directions Travel grants

GS

Gianluca Saetta

Specialist

7 Body integrity dysphoria publications

Directions Travel grants

BL

Bigna Lenggenhager

Specialist

8 Body integrity dysphoria publications

Directions Travel grants

LL

Leandro Loriga

Specialist

1 Body integrity dysphoria publication

Directions Travel grants

MS

Marina Scattolin

Specialist

2 Body integrity dysphoria publications

Directions Travel grants

ML

Marte Roel Lesur

Specialist

2 Body integrity dysphoria publications

Directions Travel grants

EP

Eraldo Paulesu

Specialist

3 Body integrity dysphoria publications

Directions Travel grants

PB

Peter Brugger

Specialist

4 Body integrity dysphoria publications

Directions Travel grants

JH

Jasmine T Ho

CORONA, CA

Specialist

6 Body integrity dysphoria publications

Directions Travel grants

MG

Martina Gandola

Specialist

4 Body integrity dysphoria publications

Directions Travel grants

LZ

Laura Zapparoli

Specialist

4 Body integrity dysphoria publications

Directions Travel grants

GS

Gerardo Salvato

Specialist

4 Body integrity dysphoria publications

Directions Travel grants

EM

Elias Jabbour, MD

HOUSTON, TX

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent B-lymphoblastic leukemia/lymphoma with t(9;22)(q34.1;q11.2)Burkitt lymphoma+7 more

PI on 12 active trials

Active trials Directions Travel grants

DM

David Rosmarin, MD

BELMONT, MA

Specialist

Chronic cutaneous lupus erythematosus Hereditary palmoplantar keratoderma Hypopigmentation of the skin

PI on 4 active trials

Active trials Directions Travel grants

UC

Use Central Contact

Specialist

Acute lymphoblastic leukemia Agranulocytosis Aspergillosis+15 more

PI on 28 active trials

Active trials Directions Travel grants

IC

ICD CSD

Specialist

Acute graft versus host disease Arginine vasopressin resistance Chronic bilirubin encephalopathy+6 more

PI on 17 active trials

Active trials Directions Travel grants

MM

Michael Camilleri, MD

ROCHESTER, MN

Specialist

C syndrome Ichthyosis Inherited ichthyosis+2 more

PI on 6 active trials

Active trials Directions Travel grants

DM

Debra Mandarino, MD

MADISON, WI

Specialist

Inhalational anthrax

PI on 2 active trials

Active trials Directions Travel grants

AP

Adam L. Boxer, M.D., Ph.D.

SAN FRANCISCO, CA

Specialist

Corticobasal syndrome Progressive non-fluent aphasia Progressive supranuclear palsy-corticobasal syndrome+1 more

PI on 2 active trials

Active trials Directions Travel grants

FM

Fady I Sharara, M.D

Specialist

Ovarian hyperstimulation syndrome

PI on 2 active trials

Active trials Directions Travel grants

MS

Maurizio Sberna

Specialist

2 Body integrity dysphoria publications

Directions Travel grants

NN

Nadia Nadeau

Specialist

2 Body integrity dysphoria publications

Directions Travel grants

BI

Boehringer Ingelheim

Peoria, Arizona

Specialist

Rare Disease Specialist

Acute graft versus host disease Acute lymphoblastic leukemia Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent+55 more

PI on 123 active trials

Active trials Directions Travel grants

MP

Moshe Phillip, Professor

Specialist

Disorder of carbohydrate metabolism Genetic endocrine growth disease

PI on 3 active trials1 Body integrity dysphoria publication

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Body integrity dysphoria.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Body integrity dysphoriaForum →

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Start the conversation →

Latest news about Body integrity dysphoria

Disease timeline:

New recruiting trial: Single and Twice-daily Dosing of Ramipril on Renal Function in Chronic Kidney Disease Patients With Reduced Ejection Fraction Heart Failure

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: LIDRISE Study: A Phase 3 Study on the Efficacy and Safety of STN1013800 (Oxymetazoline HCl 0.1% Eye Drops, Single Dose) in the Treatment of Acquired Blepharoptosis.

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: Efficacy, Safety and Pharmacokinetics of DTG with RIF

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: Efficacy and Safety of 186 mcg of OPN-375 Nasal Spray Twice a Day (BID) in Adolescents With Chronic Rhinosinusitis Without Nasal Polyps

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: Tacrolimus Associated Tremors in Liver Transplantation: Immediate-Release Versus Extended-Release Formulations

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: To Determine the Effect of CYP Induction Following Administration of Nirogacestat in Healthy Adult Male Participants

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: A 16-week Trial to Investigate the Efficacy and Safety of Delgocitinib Cream 20 mg/g in Adult Participants With Mild to Severe Palmoplantar Pustulosis

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: A Study Exploring Changes in a Variety of Biomarkers Following Dosing With MT1988 in Participants at Clinical High Risk for Psychosis

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: Randomized Study Using SM-030 Gel for Adults With Melasma

A new clinical trial is recruiting patients for Body integrity dysphoria

New recruiting trial: BID LTM Digital Intervention in Aging

A new clinical trial is recruiting patients for Body integrity dysphoria

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Body integrity dysphoria

Which specialists treat Body integrity dysphoria?

25 specialists and care centers treating Body integrity dysphoria are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.