Overview
FDA & Trial Timeline
10 eventsNorthwestern University — EARLY_PHASE1
University of Auckland, New Zealand
Sohag University — NA
The University of Texas Health Science Center, Houston — NA
Kerecis Ltd. — PHASE4
University Hospital, Toulouse — PHASE2
Maastricht University Medical Center — NA
Maastricht University Medical Center — NA
Northwestern University — EARLY_PHASE1
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
3 availableDermacure
Urea is useful for the treatment of hyperkeratotic conditions such as ichthyosis
Urea 39.5% With 2% Salicylic Acid
Urea is useful for the treatment of hyperkeratotic conditions such as ichthyosis
Urea Cream 40 Percent
Urea is useful for the treatment of hyperkeratotic conditions such as ichthyosis
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Ichthyosis.
Community
No community posts yet. Be the first to share your experience with Ichthyosis.
Start the conversation →Latest news about Ichthyosis
Disease timeline:
New recruiting trial: Repurposing Dupilumab for Management of Pruritic Genetic Inflammatory Skin Disorders
A new clinical trial is recruiting patients for Ichthyosis
New recruiting trial: Comparison Between Burn Dressing Using Tilapia-Fish Skin Versus Regular Dressing
A new clinical trial is recruiting patients for Ichthyosis
New recruiting trial: Gender Affirming Vaginoplasty With Tubularized Augmented Peritoneal Cap (TAPCap) Utilizing Fish Skin Xenograft (Kerecis™)
A new clinical trial is recruiting patients for Ichthyosis
New recruiting trial: Evaluating Intact Fish Skin Graft and Standard of Care Versus Standard of Care Alone in Nonhealing Venous Leg Ulcers
A new clinical trial is recruiting patients for Ichthyosis
New trial: Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Couns
Phase NA trial recruiting. Qualitative interview
New trial: Reproductive Options in Inherited Skin Diseases
Phase NA trial recruiting.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Ichthyosis
Are there clinical trials for Ichthyosis?
Yes — 3 recruiting clinical trials are currently listed for Ichthyosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Ichthyosis?
25 specialists and care centers treating Ichthyosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.