Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
9 eventsUniversity Hospital, Tours
University Hospital, Montpellier — NA
Pakistan Institute of Living and Learning — NA
Instituto Nacional de Psiquiatría Dr. Ramón de la Fuente — NA
Harald Gündel — NA
University of California, San Diego — PHASE1
Heartseed Inc. — PHASE1, PHASE2
Chinese University of Hong Kong
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Ichthyosis-prematurity syndrome.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for Ichthyosis-prematurity syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Ichthyosis-prematurity syndrome.
Community
No community posts yet. Be the first to share your experience with Ichthyosis-prematurity syndrome.
Start the conversation →Latest news about Ichthyosis-prematurity syndrome
Disease timeline:
New recruiting trial: Transplantation of Human iPS Cell-derived Dopaminergic Progenitors (CT1-DAP001) for Parkinson's Disease (Phase I/II)
A new clinical trial is recruiting patients for Ichthyosis-prematurity syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Ichthyosis-prematurity syndrome
Which specialists treat Ichthyosis-prematurity syndrome?
21 specialists and care centers treating Ichthyosis-prematurity syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.