Necrotizing myositis

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ORPHA:699702
Who is this for?
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18Specialists8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Necrotizing myositis.

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Clinical Trials

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No actively recruiting trials found for Necrotizing myositis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Necrotizing myositis community →

Specialists

18 foundView all specialists →
SP
Samuel K Shinjo, PhD
Specialist
PI on 3 active trials
RP
Raaphorst, MD, PhD
Specialist
PI on 1 active trial
WM
Wayne M Dankner, MD
DURHAM, NC
Specialist
PI on 1 active trial1 Necrotizing myositis publication
EM
Eileen M Bulger, MD
SEATTLE, WA
Specialist
PI on 1 active trial
LP
Louise Pyndt Diederichsen, PhD
Specialist
PI on 1 active trial
AP
Anders Perner, Professor
Specialist
PI on 1 active trial1 Necrotizing myositis publication
BM
Bounthavy Homsombath, MD
AUGUSTA, GA
Specialist
PI on 1 active trial
MM
Marco Bo Hansen, MD
Specialist
PI on 2 active trials
OP
Ole Hyldegaard, MD, PhD
Specialist
PI on 3 active trials
CP
Chi-Tai Fang, MD, PhD
Specialist
PI on 1 active trial
PM
Peter V Polzik, MD
Specialist
PI on 1 active trial
EM
Eric R Henderson, MD
Specialist
PI on 1 active trial
GM
George Murphy, MRCS
Specialist
PI on 1 active trial
RM
Ramin Espandar, MD
ORLANDO, FL
Specialist
PI on 1 active trial
PM
Peter Verhamme, MD,PhD
Specialist
PI on 1 active trial
SP
Stan Monstrey, MD, PhD
Specialist
PI on 2 active trials
AM
Adolfo Pisanu, MD
Specialist
PI on 1 active trial1 Necrotizing myositis publication
MM
Manjari G Joshi, MD
BALTIMORE, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Necrotizing myositis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Necrotizing myositis

No recent news articles for Necrotizing myositis.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Necrotizing myositis

Which specialists treat Necrotizing myositis?

18 specialists and care centers treating Necrotizing myositis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.