Immunodeficiency-associated lymphoproliferative disease

Last reviewed March 21, 2026

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ORPHA:98290

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17Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Immunodeficiency-associated lymphoproliferative disease.

View clinical trials →

Clinical Trials

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No actively recruiting trials found for Immunodeficiency-associated lymphoproliferative disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Immunodeficiency-associated lymphoproliferative disease community →

Specialists

17 foundView all specialists →

LR

Lee Ratner

ALBANY, NY

Specialist

Adult T-cell leukemia/lymphoma HIV-associated cancer

PI on 3 active trials3 Immunodeficiency-associated lymphoproliferative disease publications

Active trials Directions Travel grants

RM

Robert Yarchoan, M.D.

Bethesda, Maryland

Specialist

Rare Disease Specialist

Castleman disease Harlequin ichthyosis HIV-associated cancer+6 more

PI on 13 active trials

Active trials Directions Travel grants

RM

Ramya M Ramaswami, M.D.

Bethesda, Maryland

Specialist

Rare Disease Specialist

B-cell non-Hodgkin lymphoma Castleman disease HIV-associated cancer+6 more

PI on 10 active trials

Active trials Directions Travel grants

FC

Federica Cattaneo

Specialist

Complication after organ transplantation Complications after hematopoietic stem cell transplantation Congenital Epstein-Barr virus infection+1 more

PI on 1 active trial5 Immunodeficiency-associated lymphoproliferative disease publications

Active trials Directions Travel grants

GL

Glen Lew

ATLANTA, GA

Specialist

Complication after organ transplantation Complications after hematopoietic stem cell transplantation Congenital Epstein-Barr virus infection+1 more

PI on 1 active trial

Active trials Directions Travel grants

GC

George Chen

Specialist

Acute myeloid leukaemia with myelodysplasia-related features Acute myeloid leukemia with recurrent genetic anomaly Acute radiation syndrome+28 more

PI on 2 active trials

Active trials Directions Travel grants

AN

Ariela Noy

NEW YORK, NY

Specialist

HIV-associated cancer

PI on 1 active trial

Active trials Directions Travel grants

MM

Max Gordon, M.D.

Specialist

Aggressive primary cutaneous T-cell lymphoma

PI on 2 active trials

Active trials Directions Travel grants

AM

Amrita Y. Krishnan, MD

DUARTE, CA

Specialist

Adult T-cell leukemia/lymphoma Aggressive B-cell non-Hodgkin lymphoma Burkitt lymphoma+8 more

PI on 4 active trials1 Immunodeficiency-associated lymphoproliferative disease publication

Active trials Directions Travel grants

JD

John Deeken

FAIRFAX, VA

Specialist

Acute mast cell leukemia Acute myeloid leukaemia with myelodysplasia-related features Aggressive primary cutaneous B-cell lymphoma+14 more

PI on 1 active trial

Active trials Directions Travel grants

FR

Frédéric Rieux-Laucat

Specialist

Autoimmune hepatitis type 1 BENTA disease Congenital thrombotic thrombocytopenic purpura+6 more

PI on 1 active trial12 Immunodeficiency-associated lymphoproliferative disease publications

Active trials Directions Travel grants

NM

Nina Wagner-Johnston, MD

BALTIMORE, MD

Specialist

Classic Hodgkin lymphoma Post-selective serotonin reuptake inhibitor sexual dysfunction

PI on 3 active trials

Active trials Directions Travel grants

AW

Ann Woolfrey

SEATTLE, WA

Specialist

Acute mast cell leukemia Acute radiation syndrome Adult T-cell leukemia/lymphoma+66 more

PI on 5 active trials

Active trials Directions Travel grants

DM

Daniel Ermann, MD

SALT LAKE CITY, UT

Specialist

PI on 1 active trial

Active trials Directions Travel grants

SP

Sara Dionne, PhD

Specialist

Tropical spastic paraparesis

PI on 1 active trial

Active trials Directions Travel grants

SP

Susan Stramer, Ph.D

Specialist

Autoimmune polyendocrinopathy type 1 Tropical spastic paraparesis

PI on 2 active trials

Active trials Directions Travel grants

CR

Charles S. Rabkin

ROCKVILLE, MD

Specialist

Epstein-Barr Virus-related tumor HIV-associated cancer Human herpesvirus 8-related disorder+1 more

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Immunodeficiency-associated lymphoproliferative disease.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Immunodeficiency-associated lymphoproliferative diseaseForum →

No community posts yet. Be the first to share your experience with Immunodeficiency-associated lymphoproliferative disease.

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Latest news about Immunodeficiency-associated lymphoproliferative disease

Disease timeline:

New recruiting trial: Pneumococcal Pneumonia Vaccine Series (PCV20 and PPSV23) in Patients With Chronic Lymphocytic Leukemia Associated Immunodeficiency, PROTECT CLL Trial

A new clinical trial is recruiting patients for Immunodeficiency-associated lymphoproliferative disease

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Immunodeficiency-associated lymphoproliferative disease

Which specialists treat Immunodeficiency-associated lymphoproliferative disease?

17 specialists and care centers treating Immunodeficiency-associated lymphoproliferative disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.