Primary orthostatic disorder

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ORPHA:521236
Who is this for?
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35Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Apr 2026The Impact of Improved Vagal Function on Periaqueductal Gray Connectivity

Virginia Commonwealth University — NA

TrialNOT YET RECRUITING
Dec 2025Effect of 2-HOBA in Persistent Immune Activation in Long COVID POTS

Vanderbilt University Medical Center — PHASE2

TrialRECRUITING
Nov 2025Restoring Iron Deficiency in POTS

Vanderbilt University Medical Center — PHASE2

TrialRECRUITING
Oct 2025Assesment of the Clinical Benefit of Provocation on Tilt-table in SYNCope Patients, TiltSYNC-trial

Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA) — NA

TrialRECRUITING
Oct 2025Autonomic Regulation of Blood Pressure and Heart Rate During Orthostasis and Exercise in Healthy and Hypertensive Individuals

University Medical Centre Ljubljana

TrialRECRUITING
Oct 2025Ultrasound Guided Stellate Ganglion Block in Postural Tachycardia Syndrome

Stanford University — NA

TrialNOT YET RECRUITING
Oct 2025Auto-immune Contribution in Symptom-based Sensory and Autonomic Disorders

King's College London

TrialNOT YET RECRUITING
Oct 2025Implantable Loop Recorder and Cardioneuroblation

Istituto Auxologico Italiano

TrialNOT YET RECRUITING
Oct 2025Deciphering the Mechanisms of Central BP Regulation in Patients With PD Associated With Orthostatic Hypotension

Centre Hospitalier Universitaire Vaudois

TrialNOT YET RECRUITING
Sep 2025Programming Aquatic Therapy for POTS

California State University, Dominguez Hills — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Primary orthostatic disorder.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Primary orthostatic disorder at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Primary orthostatic disorder community →

Specialists

Showing 25 of 35View all specialists →
DM
David Robertson, MD
Specialist
PI on 3 active trials
IM
Italo Biaggioni, MD
NASHVILLE, TN
Specialist
PI on 24 active trials
SM
Satish R Raj, MD MSCI
Nashville, Tennessee
Specialist

Rare Disease Specialist

PI on 17 active trials
EP
Emily M Garland, PhD
ATLANTA, GA
Specialist
PI on 3 active trials
IM
Italo Biaggioni, M.D.
NASHVILLE, TN
Specialist
PI on 4 active trials
RM
Roy Freeman, MD
BANGOR, MI
Specialist
PI on 4 active trials
LM
Luis Okamoto, MD
Specialist
PI on 2 active trials1 Primary orthostatic disorder publication
MP
Mauricio I Scanavacca, MD, PhD
Specialist
PI on 3 active trials
KP
Kon Chu, MD, PhD
Specialist
PI on 3 active trials
CM
Cyndya Shibao, M.D
Specialist
PI on 4 active trials
GP
Gail F Forrest, Phd
Specialist
PI on 3 active trials
DP
David Putrino, PT, PhD
Specialist
PI on 4 active trials
DM
David S Goldstein, M.D.
Specialist
PI on 4 active trials
AD
Andrea Maier, Dr.
Specialist
PI on 1 active trial
SM
Satish R Raj, MD
SAN LUIS OBISPO, CA
Specialist
PI on 3 active trials
JE
Jill Wecht, EdD
ROCHESTER, NY
Specialist
PI on 5 active trials
VP
Victoria E Claydon, PhD
Specialist
PI on 3 active trials
DM
David Systrom, MD
BOSTON, MA
Specialist
PI on 2 active trials
SM
Satish Raj, MD, MSCI
SAN LUIS OBISPO, CA
Specialist
PI on 2 active trials
RP
Roman Piotrowski, PhD
Specialist
PI on 1 active trial
CM
Christian Mueller, MD
FOSTER, RI
Specialist
PI on 1 active trial
GM
Geoffrey L. Heyer, MD
COLUMBUS, OH
Specialist
PI on 1 active trial1 Primary orthostatic disorder publication
RP
Roman Romero-Orthuno, PhD
Specialist
PI on 1 active trial
KM
Karen R Broder, MD
BROOKHAVEN, GA
Specialist
PI on 1 active trial
RP
Rodrigo Ferrari, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Primary orthostatic disorder.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Primary orthostatic disorderForum →

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Latest news about Primary orthostatic disorder

Disease timeline:

New recruiting trial: LIFT: Life Improvement Trial

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: POTS-FLOW: Interplay Between Gut Hormones and Autonomic Postprandial Blood Flow Regulation in Patients With POTS

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Does a Periaqueductal Gray-vagus Nerve Interface Malfunction Explain the Nat hx With Its Numerous Co-morbidities?

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Assesment of the Clinical Benefit of Provocation on Tilt-table in SYNCope Patients, TiltSYNC-trial

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Postural Sway and Counterpressure Maneuvers for Pediatric Syncope

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: A Study of Pyridostigmine in Postural Tachycardia Syndrome

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Autonomic Effects of Spinal Cord Stimulation in Spinal Cord Injury

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Cardioneuroablation for Reflex Syncope and Exercise Capacity

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Aveir DR Real-World Evidence Post-Approval Study

A new clinical trial is recruiting patients for Primary orthostatic disorder

New recruiting trial: Spinal Cord Transcutaneous Stimulation Effect on Blood Pressure in Acute Spinal Cord Injury (SCI)

A new clinical trial is recruiting patients for Primary orthostatic disorder

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Primary orthostatic disorder

Which specialists treat Primary orthostatic disorder?

25 specialists and care centers treating Primary orthostatic disorder are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.