Genetic primary orthostatic disorder

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:521232
Who is this for?
Show terms as
8Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Mar 2009Biospecimen Repository for Cardiac Arrhythmias at the Cleveland Clinic

The Cleveland Clinic

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Genetic primary orthostatic disorder.

View clinical trials →

No actively recruiting trials found for Genetic primary orthostatic disorder at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Genetic primary orthostatic disorder community →

Specialists

8 foundView all specialists →
SM
Stephen G Kaler, MD, MPH
COLUMBUS, OH
Specialist
PI on 1 active trial
AP
Amanda J Miller, Ph.D.
Specialist
PI on 1 active trial
MP
Megan L Fitzgerald, PhD
Delafield, Wisconsin
Specialist

Rare Disease Specialist

PI on 1 active trial
MM
Mina K. Chung, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Genetic primary orthostatic disorder.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Genetic primary orthostatic disorderForum →

No community posts yet. Be the first to share your experience with Genetic primary orthostatic disorder.

Start the conversation →

Latest news about Genetic primary orthostatic disorder

Disease timeline:

New recruiting trial: Biospecimen Repository for Cardiac Arrhythmias at the Cleveland Clinic

A new clinical trial is recruiting patients for Genetic primary orthostatic disorder

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Genetic primary orthostatic disorder

Which specialists treat Genetic primary orthostatic disorder?

8 specialists and care centers treating Genetic primary orthostatic disorder are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.