Overview
Primary Immunodeficiency is treated with 1 medication in our database, including ASCENIV. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by ADMA. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Primary Immunodeficiency treatment below.
Variable
Can be inherited in different ways depending on the underlying gene
Variable
Can begin at different ages, from infancy through adulthood
FDA & Trial Timeline
10 eventsUniversity of Washington — NA
Santa Catarina Federal University
Sohag University
KORU Medical Systems, Inc. — NA
ANRS, Emerging Infectious Diseases
Virchow Group — PHASE3
Children's Hospital of Philadelphia — PHASE1, PHASE2
Takeda
AIDS Malignancy Consortium — PHASE1
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
1 availableASCENIV
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersNational Institutes of Health Clinical Center
📍 Bethesda, Maryland
👤 Payal P Khincha, M.D.
👤 Christopher Grunseich, M.D.
University of Michigan
📍 Ann Arbor, Michigan
👤 Janssen Research & Development, LLC Clinicaltrial
Johns Hopkins University
📍 Baltimore, Maryland
UPMC Children's Hospital of Pittsburgh
📍 Pittsburgh, Pennsylvania
Hôpital Necker-Enfants Malades
📍 Paris
👤 Julien Rossignol, Dr
Hôpital Saint-Louis
📍 La Defense, Paris
👤 Study Physician +46 08-697-20 00, medical.info@sobi.com
Harvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
Financial Resources
1 resourcesGamimune N
Bayer Corporation
Gamimune N — Contact Bayer Corporation
3 travel grants are also available for Primary immunodeficiency patients — see Travel Grants below ↓
Travel Grants
3 grantsAccessia Health Primary Immune Deficiency - Public Insurance Financial Assistance
Accessia Health
Community
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1 articlesCaregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Primary immunodeficiency
What is Primary immunodeficiency?
Primary Immunodeficiency is treated with 1 medication in our database, including ASCENIV. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by ADMA. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Primary Immunodeficiency treatment below.
Are there clinical trials for Primary immunodeficiency?
Yes — 19 recruiting clinical trials are currently listed for Primary immunodeficiency on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Primary immunodeficiency?
25 specialists and care centers treating Primary immunodeficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Primary immunodeficiency?
1 FDA-approved treatment and 1 patient support program are currently tracked on UniteRare for Primary immunodeficiency. See the treatments and support programs sections for copay assistance, eligibility, and contact details.