Squamous cell carcinoma of the larynx

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ORPHA:494550OMIM:275355C32.8
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7Active trials40Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Squamous cell carcinoma of the larynx (also called laryngeal squamous cell carcinoma, or laryngeal cancer) is a type of cancer that starts in the voice box, which is the structure in your throat that helps you speak, breathe, and swallow. The larynx is lined with flat, scale-like cells called squamous cells, and when these cells grow out of control, a tumor forms. This is the most common type of laryngeal cancer, making up the vast majority of all voice box cancers. The cancer can affect different parts of the larynx — the area around the vocal cords (glottis), above the vocal cords (supraglottis), or below them (subglottis). Depending on where the tumor grows, it can cause changes in your voice, difficulty swallowing, or trouble breathing. The most common early sign is a hoarse or raspy voice that does not go away. Treatment depends on how advanced the cancer is when it is found. Options include surgery to remove the tumor or part of the larynx, radiation therapy, chemotherapy, or a combination of these. In some cases, the entire larynx must be removed (a procedure called a total laryngectomy), which permanently changes how a person speaks. When caught early, this cancer can often be treated successfully. Regular follow-up care is very important because the cancer can come back.

Key symptoms:

Hoarse or raspy voice lasting more than two to three weeksSore throat that does not go awayDifficulty or pain when swallowingA lump or swelling in the neckPersistent cough, sometimes with bloodShortness of breath or noisy breathingEar pain (especially on one side)Unexplained weight lossFeeling like something is stuck in the throatLoss of voice (in advanced cases)

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

10 events
Apr 2026Intralesional Chemotherapy (IC): Cisplatin + Epinephrine

University of Miami — PHASE2

TrialNOT YET RECRUITING
Mar 2026Neoadjuvant Chemotherapy and Programmed Cell Death Protein 1(PD-1) Inhibition for Head and Neck Cancer Treatment De-escalation (NeoScorch HN)

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins — PHASE2

TrialRECRUITING
Jan 2026Quality of Life and Functional Outcomes in Laryngeal Cancer Patients

Saglik Bilimleri Universitesi

TrialNOT YET RECRUITING
Sep 2025High-Resolution PET-CT Imaging for Surgical Margin Visualization

Vanderbilt-Ingram Cancer Center — NA

TrialRECRUITING
Apr 2025Comparing Neoadjuvant Chemotherapy Combined With PD-1 Inhibitor Versus Neoadjuvant Chemotherapy in Locally Advanced Laryngeal and Hypopharyngeal Carcinoma

Fudan University — PHASE3

TrialNOT YET RECRUITING
Apr 2025The Relationship Between the Differential Expression of FosB Protein in Laryngeal Cancer Tissues and Clinical Prognosis

Yang ji

TrialNOT YET RECRUITING
Feb 2025Use of SPY Imaging System to Minimize Fistulas After Hypopharyngeal Reconstruction

Matthew Spector — PHASE2

TrialRECRUITING
Nov 2023Testing the Safety of Giving a Standard Dose of Radiation Over a Shorter Period of Time for Patients Who Had Surgery for Intermediate-Risk Head and Neck Cancer

American College of Radiology — PHASE1

TrialACTIVE NOT RECRUITING
Aug 2023Neoadjuvant Chemoimmunotherapy Followed By Radiation Or Organ Preservation Surgery In Laryngeal/Hypopharyngeal Cancer

Fudan University — PHASE2

TrialRECRUITING
Aug 2019Cisplatin, Docetaxel, and Pembrolizumab in Treating Patients With Stage II-III Laryngeal Cancer

M.D. Anderson Cancer Center — PHASE2

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Squamous cell carcinoma of the larynx.

7 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

7 recruitingView all trials with filters →
Phase 24 trials
Neoadjuvant Chemotherapy and Programmed Cell Death Protein 1(PD-1) Inhibition for Head and Neck Cancer Treatment De-escalation (NeoScorch HN)
Phase 2
Actively Recruiting
PI: Nyall R London, MD, Ph.D (Otolaryngology - Broadway) · Sites: Baltimore, Maryland · Age: 1899 yrs
Neoadjuvant Chemoimmunotherapy Followed By Radiation Or Organ Preservation Surgery In Laryngeal/Hypopharyngeal Cancer
Phase 2
Actively Recruiting
· Sites: Shanghai, Shanghai Municipality · Age: 1875 yrs
Cisplatin, Docetaxel, and Pembrolizumab in Treating Patients With Stage II-III Laryngeal Cancer
Phase 2
Active
PI: Renata Ferrarotto (M.D. Anderson Cancer Center) · Sites: Houston, Texas · Age: 1899 yrs
Use of SPY Imaging System to Minimize Fistulas After Hypopharyngeal Reconstruction
Phase 2
Actively Recruiting
PI: Matthew E Spector, MD (University of Pittsburgh/UPMC) · Sites: Pittsburgh, Pennsylvania · Age: 1899 yrs
Phase 12 trials
Trial of Stereotactic HYpofractionateD RadioAblative (HYDRA) Treatment of Laryngeal Cancer
Phase 1
Actively Recruiting
PI: Jack Phan, MD, PHD (M.D. Anderson Cancer Center) · Sites: Houston, Texas · Age: 1899 yrs
Testing the Safety of Giving a Standard Dose of Radiation Over a Shorter Period of Time for Patients Who Had Surgery for Intermediate-Risk Head and Neck Cancer
Phase 1
Active
PI: Etta Pisano, MD (American College of Radiology) · Sites: Hershey, Pennsylvania · Age: 1880 yrs
N/A1 trial
High-Resolution PET-CT Imaging for Surgical Margin Visualization
N/A
Actively Recruiting
PI: Michael Topf, MD (Vanderbilt University/Ingram Cancer Center) · Sites: Nashville, Tennessee · Age: 1899 yrs

Specialists

Showing 25 of 40View all specialists →
HH
Henrik Hellquist
Specialist
2 Squamous cell carcinoma of the larynx publications
AN
Alfons Nadal
Specialist
2 Squamous cell carcinoma of the larynx publications
AM
Antti A Mäkitie
Specialist
2 Squamous cell carcinoma of the larynx publications
FL
Fernando López
Specialist
2 Squamous cell carcinoma of the larynx publications
PS
Primož Strojan
Specialist
2 Squamous cell carcinoma of the larynx publications
CC
Carlos M Chiesa-Estomba
Specialist
1 Squamous cell carcinoma of the larynx publication
NZ
Nina Zidar
Specialist
2 Squamous cell carcinoma of the larynx publications
CP
Cesare Piazza
Specialist
2 Squamous cell carcinoma of the larynx publications
AA
Abbas Agaimy
Specialist
2 Squamous cell carcinoma of the larynx publications
GS
Göran Stenman
Specialist
2 Squamous cell carcinoma of the larynx publications
JB
Julie E Bauman
WASHINGTON, DC
Specialist
PI on 1 active trial5 Squamous cell carcinoma of the larynx publications
RF
Renata Ferrarotto
HOUSTON, TX
Specialist
PI on 5 active trials4 Squamous cell carcinoma of the larynx publications
AM
Andy M. Trotti, MD
TAMPA, FL
Specialist
PI on 2 active trials1 Squamous cell carcinoma of the larynx publication
MM
Malcolm D Mattes
MORGANTOWN, WV
Specialist
PI on 1 active trial1 Squamous cell carcinoma of the larynx publication
NF
Nicolas Fakhry
Specialist
1 Squamous cell carcinoma of the larynx publication
GC
Giovanni Cammaroto
Specialist
1 Squamous cell carcinoma of the larynx publication
MM
Miguel Mayo-Yáñez
Specialist
1 Squamous cell carcinoma of the larynx publication
AM
Antonino Maniaci
Specialist
1 Squamous cell carcinoma of the larynx publication
MB
Maria Rosaria Barillari
Specialist
1 Squamous cell carcinoma of the larynx publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Squamous cell carcinoma of the larynx.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Squamous cell carcinoma of the larynx

Disease timeline:

New recruiting trial: Use of SPY Imaging System to Minimize Fistulas After Hypopharyngeal Reconstruction

A new clinical trial is recruiting patients for Squamous cell carcinoma of the larynx

New recruiting trial: Neoadjuvant Chemotherapy and Programmed Cell Death Protein 1(PD-1) Inhibition for Head and Neck Cancer Treatment De-escalation (NeoScorch HN)

A new clinical trial is recruiting patients for Squamous cell carcinoma of the larynx

New recruiting trial: Trial of Stereotactic HYpofractionateD RadioAblative (HYDRA) Treatment of Laryngeal Cancer

A new clinical trial is recruiting patients for Squamous cell carcinoma of the larynx

New recruiting trial: High-Resolution PET-CT Imaging for Surgical Margin Visualization

A new clinical trial is recruiting patients for Squamous cell carcinoma of the larynx

New recruiting trial: Intraoral Hypothermia Device for Preserving Taste During Radiation

A new clinical trial is recruiting patients for Squamous cell carcinoma of the larynx

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What stage is my cancer, and what does that mean for my treatment options?,Is it possible to treat this cancer while preserving my voice box?,What are the short-term and long-term side effects of each treatment option?,Will I need a feeding tube, and if so, for how long?,What does recovery look like after surgery or radiation, and when can I return to normal activities?,Should I be tested for any genetic or molecular markers that might affect my treatment?,What support services — such as speech therapy, nutrition counseling, or mental health support — are available to me?

Common questions about Squamous cell carcinoma of the larynx

What is Squamous cell carcinoma of the larynx?

Squamous cell carcinoma of the larynx (also called laryngeal squamous cell carcinoma, or laryngeal cancer) is a type of cancer that starts in the voice box, which is the structure in your throat that helps you speak, breathe, and swallow. The larynx is lined with flat, scale-like cells called squamous cells, and when these cells grow out of control, a tumor forms. This is the most common type of laryngeal cancer, making up the vast majority of all voice box cancers. The cancer can affect different parts of the larynx — the area around the vocal cords (glottis), above the vocal cords (supraglo

How is Squamous cell carcinoma of the larynx inherited?

Squamous cell carcinoma of the larynx follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Squamous cell carcinoma of the larynx typically begin?

Typical onset of Squamous cell carcinoma of the larynx is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Squamous cell carcinoma of the larynx?

Yes — 7 recruiting clinical trials are currently listed for Squamous cell carcinoma of the larynx on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Squamous cell carcinoma of the larynx?

25 specialists and care centers treating Squamous cell carcinoma of the larynx are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.