Overview
Amyotrophic Lateral Sclerosis is treated with 8 medications in our database, including RADICAVA, RADICAVA ORS, Edaravone, Finzala, edaravone, Riluzole, and 3 more. 7 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Mitsubishi Tanabe, Mayne, Sanofi, Italfarmaco, Biogen and others. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Amyotrophic Lateral Sclerosis treatment below.
Also known as:
Clinical phenotype terms— hover any for plain English:
Variable
Can be inherited in different ways depending on the underlying gene
Adult
Begins in adulthood (age 18 or older)
FDA & Trial Timeline
10 eventsRevalesio Corporation — PHASE2
Gipfel Life Sciences GmbH — PHASE2, PHASE3
Trustees of Dartmouth College — NA
University Hospital, Tours
Nova Southeastern University
Horizon Health Network — NA
Biogen
Royal Brompton & Harefield NHS Foundation Trust
Massachusetts General Hospital
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
6 availableRilutek
Treatment of patients with amyotrophic lateral sclerosis (ALS). Riluzole extends survival and time to tracheostomy. First drug approved for ALS (1995).
RADICAVA, RADICAVA ORS
* Patient Copay Amount: Pay as little as $0 per RADICAVA ORS® prescription dispense. * Maximum Annual Benefit Limit: Subject to a maximum annual benefit limit per calendar year (specific dollar amount
Finzala
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Edaravone
* Patient Copay Amount: Pay as little as $0 per prescription dispense. * Maximum Annual Benefit Limit: Subject to a maximum annual benefit limit per calendar year (Specific dollar amount Not Publicly
ZELVYSIA
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
QALSODY
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersMassachusetts General Hospital
📍 Boston, Massachusetts
👤 Matthew Frigault, MD
👤 Janssen Research & Development, LLC Clinical Trial
Northwestern University
📍 Chicago, Illinois
👤 Ann (Annie) W Silk
University of Michigan
📍 Ann Arbor, Michigan
👤 Janssen Research & Development, LLC Clinicaltrial
University of Minnesota
📍 Minneapolis, Minnesota
Washington University
📍 St Louis, Missouri
👤 Sawa M Ito, MD, PhD
👤 Anthony A. Amato, MD
Mayo Clinic
📍 Jacksonville, Florida
University of California San Diego
📍 La Jolla, California
Indiana University
📍 Indianapolis, Indiana
Financial Resources
6 resourcesThe Assistance Fund — Amyotrophic lateral sclerosis
The Assistance Fund
Amyotrophic lateral sclerosis
HealthWell Foundation — Amyotrophic lateral sclerosis
HealthWell Foundation
Amyotrophic lateral sclerosis
PAN Foundation — Amyotrophic lateral sclerosis
PAN Foundation
Amyotrophic lateral sclerosis
Good Days — Amyotrophic lateral sclerosis
Good Days
Amyotrophic lateral sclerosis
NORD Patient Assistance — Amyotrophic lateral sclerosis
NORD Patient Assistance
Amyotrophic lateral sclerosis
Patient Advocate Foundation — Amyotrophic lateral sclerosis
Patient Advocate Foundation
Amyotrophic lateral sclerosis
10 travel grants are also available for Amyotrophic lateral sclerosis patients — see Travel Grants below ↓
Travel Grants
10 grantsIpsen Cares Patient Assistance Program
Pfizer RxPathways Support Hub Programs
Pfizer
Eligibility requires patients to be prescribed a supported Pfizer medication and meet financial criteria ranging from 300% to 500% of the Federal Poverty Level depending on the drug. The programs primarily assist uninsured or underinsured individuals with access to medicine through co-pay savings and patient assistance initiatives.
MTPA Patient Assistance Program
Pfizer Dermatology Patient Access Financial Support
Pfizer
Patients must be residents of the United States or Puerto Rico and possess commercial insurance to qualify for copay savings cards. Uninsured patients or those with government insurance may be evaluated for the Pfizer Patient Assistance Program based on income, household size, and specific medicine prescribed.
Community
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5 articlesCaregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Amyotrophic lateral sclerosis
What is Amyotrophic lateral sclerosis?
Amyotrophic Lateral Sclerosis is treated with 8 medications in our database, including RADICAVA, RADICAVA ORS, Edaravone, Finzala, edaravone, Riluzole, and 3 more. 7 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Mitsubishi Tanabe, Mayne, Sanofi, Italfarmaco, Biogen and others. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Amyotrophic Lateral Sclerosis treatment below.
At what age does Amyotrophic lateral sclerosis typically begin?
Typical onset of Amyotrophic lateral sclerosis is adult. Age of onset can vary across affected individuals.
Are there clinical trials for Amyotrophic lateral sclerosis?
Yes — 20 recruiting clinical trials are currently listed for Amyotrophic lateral sclerosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Amyotrophic lateral sclerosis?
25 specialists and care centers treating Amyotrophic lateral sclerosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Amyotrophic lateral sclerosis?
7 FDA-approved treatments and 9 patient support programs are currently tracked on UniteRare for Amyotrophic lateral sclerosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.