Overview
Amyotrophic Lateral Sclerosis (ALS) is treated with 3 medications in our database, including RADICAVA, RADICAVA ORS, Finzala, ZELVYSIA. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Mitsubishi Tanabe, Mayne, Chiesi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Amyotrophic Lateral Sclerosis (ALS) treatment below.
Also known as:
Variable
Can be inherited in different ways depending on the underlying gene
Adult
Begins in adulthood (age 18 or older)
FDA & Trial Timeline
7 eventsCampus Bio-Medico University — NA
1ST Biotherapeutics, Inc. — PHASE1
Relyvrio: FDA approved
Treatment of amyotrophic lateral sclerosis (ALS) in adults
Tiglutik: FDA approved
TIGLUTIK is indicated for the treatment of amyotrophic lateral sclerosis (ALS).
EXSERVAN: FDA approved
EXSERVAN is indicated for the treatment of amyotrophic lateral sclerosis (ALS).
Radicava: FDA approved
Treatment of amyotrophic lateral sclerosis (ALS)
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
4 availableQalsody
QALSODY is indicated for the treatment of amyotrophic lateral sclerosis (ALS) in adults who have a mutation in the superoxide dismutase 1 (SOD1) gene.
Tiglutik
TIGLUTIK is indicated for the treatment of amyotrophic lateral sclerosis (ALS).
EXSERVAN
EXSERVAN is indicated for the treatment of amyotrophic lateral sclerosis (ALS).
Radicava
Treatment of amyotrophic lateral sclerosis (ALS)
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
2 resourcesRelyvrio
Amylyx Pharmaceuticals, Inc.
Amyotrophic Lateral Sclerosis (ALS)
Travel Grants
No travel grants are currently matched to Amyotrophic Lateral Sclerosis (ALS).
Community
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Amyotrophic Lateral Sclerosis (ALS)
What is Amyotrophic Lateral Sclerosis (ALS)?
Amyotrophic Lateral Sclerosis (ALS) is treated with 3 medications in our database, including RADICAVA, RADICAVA ORS, Finzala, ZELVYSIA. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Mitsubishi Tanabe, Mayne, Chiesi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Amyotrophic Lateral Sclerosis (ALS) treatment below.
At what age does Amyotrophic Lateral Sclerosis (ALS) typically begin?
Typical onset of Amyotrophic Lateral Sclerosis (ALS) is adult. Age of onset can vary across affected individuals.
Are there clinical trials for Amyotrophic Lateral Sclerosis (ALS)?
Yes — 3 recruiting clinical trials are currently listed for Amyotrophic Lateral Sclerosis (ALS) on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Amyotrophic Lateral Sclerosis (ALS)?
25 specialists and care centers treating Amyotrophic Lateral Sclerosis (ALS) are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Amyotrophic Lateral Sclerosis (ALS)?
3 patient support programs are currently tracked on UniteRare for Amyotrophic Lateral Sclerosis (ALS). See the treatments and support programs sections for copay assistance, eligibility, and contact details.