Thymic neuroendocrine tumor

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:97289C37
Who is this for?
Show terms as
11Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Clinical phenotype terms— hover any for plain English:

Neoplasm of the thymusHP:0100521Neuroendocrine neoplasmHP:0100634Abnormal mediastinum morphologyHP:0045026Mediastinal lymphadenopathyHP:0100721Increased circulating cortisol levelHP:0003118Increased circulating ACTH levelHP:0003154Abnormal vena cava morphologyHP:0005345Prominent veins on trunkHP:0007457Abnormal breath soundHP:0030829Neoplasm of the endocrine systemHP:0100568Carcinoid tumorHP:0100570Pituitary adenomaHP:0002893Calcium nephrolithiasisHP:0004724
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Thymic neuroendocrine tumor.

View clinical trials →

No actively recruiting trials found for Thymic neuroendocrine tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Thymic neuroendocrine tumor community →

Specialists

11 foundView all specialists →
AP
Annamaria Colao, MD, PhD
Specialist
PI on 3 active trials
JM
Jonathan Strosberg, M.D.
TAMPA, FL
Specialist
PI on 6 active trials
GM
Gianni Bisogno, MD
Specialist
PI on 2 active trials
LP
Laura C Hernández Ramírez, MD, PhD
Mexico City, Mexico City
Specialist

Rare Disease Specialist

PI on 1 active trial
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial
NM
Nicola Fazio, MD
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Thymic neuroendocrine tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Thymic neuroendocrine tumorForum →

No community posts yet. Be the first to share your experience with Thymic neuroendocrine tumor.

Start the conversation →

Latest news about Thymic neuroendocrine tumor

No recent news articles for Thymic neuroendocrine tumor.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Thymic neuroendocrine tumor

Which specialists treat Thymic neuroendocrine tumor?

11 specialists and care centers treating Thymic neuroendocrine tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.