Renal dysplasia

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Who is this for?
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36Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Functional abnormality of the bladderHP:0000009Abnormal renal tubule morphologyHP:0000091Abnormal renal calyx morphologyHP:0011130Abnormal nephron morphologyHP:0012575UreteroceleHP:0000070HydroureterHP:0000072Thickened glomerular basement membraneHP:0004722Ureteral atresiaHP:0005999
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Renal dysplasia.

View clinical trials →

No actively recruiting trials found for Renal dysplasia at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Renal dysplasia community →

Specialists

Showing 25 of 36View all specialists →
PM
Pierre-François Plouin, MD
Specialist
PI on 1 active trial
XP
Xavier Barral, PhD
Specialist
PI on 1 active trial
HM
He Huang, MD
Hanzhou, Zhejiang
Specialist

Rare Disease Specialist

PI on 11 active trials
PM
Pierre-Francois Plouin, MD
Specialist
PI on 1 active trial
RO
Robert Orlowski
HOUSTON, TX
Specialist
PI on 2 active trials
KP
Kurt Fisher, MD, PhD
OMAHA, NE
Specialist
PI on 1 active trial
GT
Gulten Tuncel
Specialist
1 Renal dysplasia publication
AK
Angelina Haesoo Kim
MADISON, WI
Specialist
1 Renal dysplasia publication
WJ
Weizhen Ji
Specialist
1 Renal dysplasia publication
LJ
Lauren Jeffries
Specialist
1 Renal dysplasia publication
IS
Irmak Sakin
Specialist
1 Renal dysplasia publication
SV
Stephen Viviano
LIVINGSTON, NJ
Specialist
1 Renal dysplasia publication
SA
Stephanie Marie Aguilera
MANTECA, CA
Specialist
1 Renal dysplasia publication
GG
Gizem Goles
Specialist
1 Renal dysplasia publication
YZ
Yuanyuan Zhang
BEAR, DE
Specialist
1 Renal dysplasia publication
DZ
Deying Zhang
Specialist
1 Renal dysplasia publication
ME
Mohammed Elghorably
Specialist
PI on 1 active trial40 Renal dysplasia publications
AM
Ayman Kassem, MD
Specialist
PI on 1 active trial1 Renal dysplasia publication
AM
Ahmed Sharawy, MD
Specialist
PI on 1 active trial1 Renal dysplasia publication
LM
Luke Harper, MD
Specialist
PI on 1 active trial1 Renal dysplasia publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Simulect

Novartis

Kidney Transplant

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copay card
Copay CardPatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Renal dysplasia.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Renal dysplasiaForum →

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Latest news about Renal dysplasia

No recent news articles for Renal dysplasia.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Renal dysplasia

Which specialists treat Renal dysplasia?

25 specialists and care centers treating Renal dysplasia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Renal dysplasia?

1 patient support program are currently tracked on UniteRare for Renal dysplasia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.