Bilateral multicystic dysplastic kidney

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ORPHA:97364Q61.4
Who is this for?
Show terms as
2Active trials11Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Bilateral MCDKBilateral multicystic renal dysplasia
Orphanet ↗NORD ↗

FDA & Trial Timeline

5 events
Dec 2024Amnioinfusion for Fetal Renal Failure

Fetal Care Center, PLLC — NA

TrialRECRUITING
Oct 2024Different Surgical Modalities in the Management of Pelvi-ureteric Junction Obstruction

Assiut University — NA

TrialACTIVE NOT RECRUITING
Jan 2024The PRO-FUTURE Project

University of Campania Luigi Vanvitelli

TrialRECRUITING
Dec 2018Renal Anhydramnios Fetal Therapy

Johns Hopkins University — PHASE1

TrialACTIVE NOT RECRUITING
Nov 2017CTT on Renogram as an Early Marker of Significant Obstruction in Uretero-pelvic Junction Syndrome

Centre Hospitalier Universitaire de la Réunion — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Bilateral multicystic dysplastic kidney.

2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

2 recruitingView all trials with filters →
Phase 11 trial
Renal Anhydramnios Fetal Therapy
Phase 1
Active
PI: Meredith Atkinson (Johns Hopkins University) · Sites: Los Angeles, California; San Francisco, California +7 more · Age: 18–99 yrs
View on ClinicalTrials.gov ↗I'm interested →
N/A1 trial
Amnioinfusion for Fetal Renal Failure
N/A
Actively Recruiting
· Sites: Dallas, Texas
View on ClinicalTrials.gov ↗I'm interested →

Specialists

11 foundView all specialists →
MA
Meredith Atkinson
BALTIMORE, MD
Specialist
PI on 1 active trial
QM
Quang T Nguyen, M.D.
Specialist
PI on 4 active trials
AM
Ayman Kassem, MD
Specialist
PI on 1 active trial1 Bilateral multicystic dysplastic kidney publication
AM
Ahmed Sharawy, MD
Specialist
PI on 1 active trial1 Bilateral multicystic dysplastic kidney publication
ME
Mohammed Elghorably
Specialist
PI on 1 active trial40 Bilateral multicystic dysplastic kidney publications
LM
Luke Harper, MD
Specialist
PI on 1 active trial1 Bilateral multicystic dysplastic kidney publication
VJ
Vijaya Vemulakonda, MD, JD
Aurora, Colorado
Specialist

Rare Disease Specialist

PI on 1 active trial
JD
Jing P Liu, doctorat
Specialist
PI on 1 active trial
JM
Jean-Louis Bonnal, MD
Specialist
PI on 1 active trial
MP
Mohammed S ElSheemy, A professor
Specialist
PI on 1 active trial
JM
Jeffrey Campbell, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Bilateral multicystic dysplastic kidney.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Bilateral multicystic dysplastic kidney

Disease timeline:

New recruiting trial: CTT on Renogram as an Early Marker of Significant Obstruction in Uretero-pelvic Junction Syndrome

A new clinical trial is recruiting patients for Bilateral multicystic dysplastic kidney

New recruiting trial: Amnioinfusion for Fetal Renal Failure

A new clinical trial is recruiting patients for Bilateral multicystic dysplastic kidney

New recruiting trial: Ultrasound Localization Microscopy in Patient With Congenital Anomalies of the Kidney and Urinary Tract (CAKUT)

A new clinical trial is recruiting patients for Bilateral multicystic dysplastic kidney

New recruiting trial: The PRO-FUTURE Project

A new clinical trial is recruiting patients for Bilateral multicystic dysplastic kidney

New recruiting trial: Decision Aid for Parents of Infants With UPJO

A new clinical trial is recruiting patients for Bilateral multicystic dysplastic kidney

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Bilateral multicystic dysplastic kidney

Are there clinical trials for Bilateral multicystic dysplastic kidney?

Yes — 2 recruiting clinical trials are currently listed for Bilateral multicystic dysplastic kidney on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Bilateral multicystic dysplastic kidney?

11 specialists and care centers treating Bilateral multicystic dysplastic kidney are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.