Renal dysplasia, bilateral

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ORPHA:93173Q61.4
Who is this for?
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11Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Renal dysplasia, bilateral.

View clinical trials →

No actively recruiting trials found for Renal dysplasia, bilateral at this time.

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Specialists

11 foundView all specialists →
AM
Ayman Kassem, MD
Specialist
PI on 1 active trial1 Renal dysplasia, bilateral publication
AM
Ahmed Sharawy, MD
Specialist
PI on 1 active trial1 Renal dysplasia, bilateral publication
ME
Mohammed Elghorably
Specialist
PI on 1 active trial40 Renal dysplasia, bilateral publications
LM
Luke Harper, MD
Specialist
PI on 1 active trial1 Renal dysplasia, bilateral publication
VJ
Vijaya Vemulakonda, MD, JD
Aurora, Colorado
Specialist

Rare Disease Specialist

PI on 1 active trial
MP
Mohammed S ElSheemy, A professor
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Renal dysplasia, bilateral.

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Community

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Latest news about Renal dysplasia, bilateral

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Renal dysplasia, bilateral

Which specialists treat Renal dysplasia, bilateral?

11 specialists and care centers treating Renal dysplasia, bilateral are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.