Rare nervous system tumor

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ORPHA:98062
Who is this for?
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28Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Rare nervous system tumor.

View clinical trials →

No actively recruiting trials found for Rare nervous system tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare nervous system tumor community →

Specialists

Showing 25 of 28View all specialists →
AM
Amar Gajjar, MD
MEMPHIS, TN
Specialist
PI on 8 active trials
DH
Douglas S Hawkins
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 2 active trials17 Rare nervous system tumor publications
BM
Brigitte C Widemann, M.D.
Bethesda, Maryland
Specialist

Rare Disease Specialist

PI on 18 active trials
GM
Giles W. Robinson, MD
MEMPHIS, TN
Specialist
PI on 4 active trials1 Rare nervous system tumor publication
SA
Srivandana Akshintala
WASHINGTON, DC
Specialist
PI on 1 active trial
TM
Thomas Cash, MD
BIRMINGHAM, AL
Specialist
PI on 3 active trials
SP
Sandip P Patel
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial
MW
Michael Weller
Specialist
PI on 2 active trials1 Rare nervous system tumor publication
GD
Gevorg Tamamyan, MD, PhD, DSc
Specialist
PI on 2 active trials
SP
Staci M Peron, Ph.D.
Bethesda, Maryland
Specialist

Rare Disease Specialist

PI on 8 active trials
GM
Gianni Bisogno, MD
Specialist
PI on 2 active trials
MP
Marcelo Serra, PhD
Buenos Aires, Buenos Aires
Specialist

Rare Disease Specialist

PI on 1 active trial
MP
Maria Lourdes Posadas Martinez, PhD
Specialist
PI on 1 active trial
AP
Anna Jansen, MD, PhD
Silver Spring, Maryland
Specialist

Rare Disease Specialist

PI on 2 active trials
AT
Amanda M Termuhlen
MINNEAPOLIS, MN
Specialist
PI on 1 active trial1 Rare nervous system tumor publication
GM
Giles Robinson, MD
MEMPHIS, TN
Specialist
PI on 1 active trial1 Rare nervous system tumor publication
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial
CM
Christophe Massard, MD
Specialist
PI on 1 active trial
RM
Ruzanna Papyan, MD
Specialist
PI on 1 active trial
PM
Paolo Ferroli, MD
Specialist
PI on 1 active trial
JM
Julieta Hoveyan, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
⚗️ Trial Site

Arkansas Children's Hospital

📍 Little Rock, Arkansas

⚗️ Trial Site

Children's Hospital of Orange County

📍 Orange, California

👤 Richard Neibeger, MD

⚗️ Trial Site

Banner University Medical Center - Tucson

📍 Tucson, Arizona

⚗️ Trial Site

Kingman Regional Medical Center

📍 Kingman, Arizona

⚗️ Trial Site

Cedars Sinai Medical Center

📍 Los Angeles, California

👤 Janssen Research & Development, LLC Clinical Trial

⚗️ Trial Site

UCSF Benioff Children's Hospital Oakland

📍 Oakland, California

👤 Neeta Thakur, MD, MPH

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

Travel Grants

No travel grants are currently matched to Rare nervous system tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare nervous system tumor

Disease timeline:

New trial: Project: Every Child for Younger Patients With Cancer

Phase NA trial recruiting. Cytology Specimen Collection Procedure

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare nervous system tumor

Which specialists treat Rare nervous system tumor?

25 specialists and care centers treating Rare nervous system tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.