Langerhans cell sarcoma

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ORPHA:86897C96.4
Who is this for?
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19Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Langerhans cell sarcoma.

View clinical trials →

No actively recruiting trials found for Langerhans cell sarcoma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Langerhans cell sarcoma community →

Specialists

19 foundView all specialists →
AK
AeRang Kim
BETHESDA, MD
Specialist
PI on 1 active trial
GM
Gaurav Goyal, MD
STONY BROOK, NY
Specialist
PI on 2 active trials1 Langerhans cell sarcoma publication
DP
Donald W Parsons
Specialist
PI on 1 active trial17 Langerhans cell sarcoma publications
KV
Kieuhoa T Vo
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 2 active trials1 Langerhans cell sarcoma publication
TM
Thomas Cash, MD
BIRMINGHAM, AL
Specialist
PI on 3 active trials
EA
Elizabeth D Alva
NORTH LAS VEGAS, NV
Specialist
PI on 1 active trial
KJ
Katherine A Janeway
BOSTON, MA
Specialist
PI on 2 active trials7 Langerhans cell sarcoma publications
MI
Meredith S Irwin
CINCINNATI, OH
Specialist
PI on 1 active trial
JG
Julia Glade-Bender
Specialist
PI on 3 active trials
RM
Rajen Mody
ANN ARBOR, MI
Specialist
PI on 2 active trials
SP
Sarina A Piha-Paul
Houston, Texas
Specialist

Rare Disease Specialist

PI on 2 active trials2 Langerhans cell sarcoma publications
TL
Theodore W Laetsch
PHILADELPHIA, PA
Specialist
PI on 2 active trials
SC
Susan N Chi
Specialist
PI on 1 active trial
AL
Alice Lee
Specialist
PI on 1 active trial
CP
Christine A Pratilas
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Langerhans cell sarcoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Langerhans cell sarcoma

No recent news articles for Langerhans cell sarcoma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Langerhans cell sarcoma

Which specialists treat Langerhans cell sarcoma?

19 specialists and care centers treating Langerhans cell sarcoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.