Pulmonary Langerhans cell histiocytosis

Last reviewed March 21, 2026

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ORPHA:687733C96.5

Who is this for?

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22Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

Single-system pulmonary Langerhans cell histiocytosis Single-system pulmonary histiocytosis X Single-system Langerhans cell granulomatosis PLCH

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Pulmonary Langerhans cell histiocytosis.

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Clinical Trials

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No actively recruiting trials found for Pulmonary Langerhans cell histiocytosis at this time.

New trials open frequently. Follow this disease to get notified.

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Specialists

22 foundView all specialists →

MD

Matthew Krebs, Dr

Specialist

ALK-positive anaplastic large cell lymphoma Anaplastic thyroid carcinoma Bronchial neuroendocrine tumor+56 more

PI on 7 active trials

Active trials Directions Travel grants

GM

Gaurav Goyal, MD

STONY BROOK, NY

Specialist

Erdheim-Chester disease Hemophagocytic syndrome Langerhans cell sarcoma

PI on 2 active trials1 Pulmonary Langerhans cell histiocytosis publication

Active trials Directions Travel grants

AP

Abdellatif TAZI, MD PhD

Specialist

Langerhans cell histiocytosis

PI on 1 active trial

Active trials Directions Travel grants

AR

Anna Raciborska

Specialist

Langerhans cell histiocytosis

PI on 3 active trials2 Pulmonary Langerhans cell histiocytosis publications

Active trials Directions Travel grants

AM

Anish Ray, MD

FORT WORTH, TX

Specialist

Langerhans cell histiocytosis

PI on 1 active trial1 Pulmonary Langerhans cell histiocytosis publication

Active trials Directions Travel grants

DP

Donald W Parsons

Specialist

Atypical teratoid rhabdoid tumor Genetic interstitial lung disease Hepatoblastoma+4 more

PI on 1 active trial17 Pulmonary Langerhans cell histiocytosis publications

Active trials Directions Travel grants

AO

Amanda Olson

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to radiation Acute radiation syndrome Cutaneous neuroendocrine carcinoma+5 more

PI on 2 active trials19 Pulmonary Langerhans cell histiocytosis publications

Active trials Directions Travel grants

AF

Andrea T Franson

ANN ARBOR, MI

Specialist

Atypical teratoid rhabdoid tumor Dendritic cell sarcoma not otherwise specified Embryonal rhabdomyosarcoma+17 more

PI on 1 active trial

Active trials Directions Travel grants

TM

Thomas Cash, MD

BIRMINGHAM, AL

Specialist

Atypical teratoid rhabdoid tumor Germ cell tumor Langerhans cell sarcoma+12 more

PI on 3 active trials

Active trials Directions Travel grants

DM

Diane George, MD

Specialist

Autosomal anomaly syndrome Autosomal recessive severe congenital neutropenia Beta-thalassemia and related disorders+17 more

PI on 2 active trials

Active trials Directions Travel grants

MI

Meredith S Irwin

CINCINNATI, OH

Specialist

Atypical teratoid rhabdoid tumor Bone sarcoma Central nervous system embryonal tumor+28 more

PI on 1 active trial

Active trials Directions Travel grants

JG

Julia Glade-Bender

Specialist

Genetic interstitial lung disease Hepatoblastoma High-grade astrocytoma+4 more

PI on 3 active trials

Active trials Directions Travel grants

RM

Rajen Mody

ANN ARBOR, MI

Specialist

Atypical teratoid rhabdoid tumor Bone sarcoma Embryonal rhabdomyosarcoma+17 more

PI on 2 active trials

Active trials Directions Travel grants

PP

Polyzois Makras, MD, PhD

Specialist

Langerhans cell histiocytosis Sclerosteosis

PI on 2 active trials

Active trials Directions Travel grants

SP

Shannon R Morris, MD, PhD

Specialist

Langerhans cell histiocytosis

PI on 1 active trial

Active trials Directions Travel grants

TM

Tanya Trippett, MD

NEW YORK, NY

Specialist

Bone sarcoma Burkitt lymphoma Neuroblastoma+2 more

PI on 7 active trials

Active trials Directions Travel grants

MD

minghui Duan, Dr.

Specialist

Langerhans cell histiocytosis

PI on 1 active trial

Active trials Directions Travel grants

CM

Christen Ebens, MD

MINNEAPOLIS, MN

Specialist

Griscelli syndrome Hemophagocytic syndrome Immunodeficiency by defective expression of MHC class II+8 more

PI on 2 active trials

Active trials Directions Travel grants

KC

Kevin J O'Brien, C.R.N.P.

Specialist

Erdheim-Chester disease Genetic eye tumor Genetic hypopigmentation of the skin+5 more

PI on 1 active trial

Active trials Directions Travel grants

RM

Rui Zhang, MD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

KM

Kenneth McClain, MD

EUGENE, OR

Specialist

PI on 1 active trial

Active trials Directions Travel grants

MP

Michael Scheurer, PhD

Specialist

Genetic interstitial lung disease

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Pulmonary Langerhans cell histiocytosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Pulmonary Langerhans cell histiocytosis

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Pulmonary Langerhans cell histiocytosis

Which specialists treat Pulmonary Langerhans cell histiocytosis?

22 specialists and care centers treating Pulmonary Langerhans cell histiocytosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.