Rare genetic renal disease

Last reviewed

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ORPHA:98056
Who is this for?
Show terms as
1FDA treatments17Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

1 available

Ferabright

ferumoxytol· Covis Pharma GmbH■ Boxed WarningOrphan Drug

for magnetic resonance imaging (MRI) of the brain in adults with known or suspected malignant neoplasms in the brain to visualize lesions with a disrupted blood-brain barrier

View Details →FDA Label ↗

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Rare genetic renal disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare genetic renal disease community →

Specialists

17 foundView all specialists →
MP
Marina Noris, PhD
Specialist
PI on 2 active trials
MM
Michael R Knowles, MD
CHAPEL HILL, NC
Specialist
PI on 1 active trial
DM
David Goldfarb, MD
Specialist
PI on 4 active trials
SA
Srivandana Akshintala
WASHINGTON, DC
Specialist
PI on 1 active trial
JM
John C Lieske, MD
ROCHESTER, MN
Specialist
PI on 2 active trials
GM
Giuseppe Remuzzi, M.D.
Specialist
PI on 3 active trials
JM
John C Lieske, M.D.
ROCHESTER, MN
Specialist
PI on 4 active trials
VM
Vidar Edvardsson, MD
Specialist
PI on 1 active trial
EM
Eva Liu, MD
Specialist
PI on 1 active trial
JL
Jarrod Longcor
Specialist
PI on 3 active trials
PP
Peter Nordbeck, MD, PhD
Specialist
PI on 2 active trials
BM
Brigitte ESCOUBET, MD
Specialist
PI on 1 active trial
JM
John Lieske, MD
ROCHESTER, MN
Specialist
PI on 1 active trial
DM
Dawn S. Milliner, M.D.
ROCHESTER, MN
Specialist
PI on 1 active trial
JM
John E. Levine, MS MD
Specialist
PI on 3 active trials
KP
Kerry Willis, PhD
Specialist
PI on 1 active trial
DD
David Sas, DO
ROCHESTER, MN
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare genetic renal disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare genetic renal disease

No recent news articles for Rare genetic renal disease.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare genetic renal disease

Which specialists treat Rare genetic renal disease?

17 specialists and care centers treating Rare genetic renal disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Rare genetic renal disease?

1 patient support program are currently tracked on UniteRare for Rare genetic renal disease. See the treatments and support programs sections for copay assistance, eligibility, and contact details.