Primary ciliary dyskinesia, Kartagener type

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ORPHA:98861
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1Active trials25Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Dextrocardia-bronchiectasis-sinusitis syndromeImmotile cilia syndrome, Kartagener typeKartagener syndromeSiewert syndrome
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jan 2004Pathogenesis of Primary Ciliary Dyskinesia (PCD) Lung Disease

University of North Carolina, Chapel Hill

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Primary ciliary dyskinesia, Kartagener type.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Other1 trial
Pathogenesis of Primary Ciliary Dyskinesia (PCD) Lung Disease
Actively Recruiting
PI: Kenneth R. Olivier, MD, MPH (University of North Carolina, Chapel Hill) · Sites: Chapel Hill, North Carolina
View on ClinicalTrials.gov ↗I'm interested →

Specialists

25 foundView all specialists →
HM
Heymut Omran, MD
Specialist
PI on 1 active trial
MM
Margaret W Leigh, MD
CHAPEL HILL, NC
Specialist
PI on 1 active trial
CP
Claudia E Kuehni, Prof
Specialist
PI on 2 active trials
MM
Margaret Rosenfeld, MD
EVANSTON, IL
Specialist
PI on 1 active trial
SP
Serge AMSELEM, MD PhD
Specialist
PI on 1 active trial
MM
Michael R Knowles, MD
CHAPEL HILL, NC
Specialist
PI on 1 active trial
ŞM
Şeyma Mutlu, MD
Specialist
PI on 1 active trial
MM
Michael Knowles, MD
CHAPEL HILL, NC
Specialist
PI on 2 active trials
KM
Kenneth Olivier, MD, MPH
ROCHESTER, MN
Specialist
PI on 1 active trial
BM
Betül Yoleri, MD
Specialist
PI on 1 active trial
KS
Kim G Nielsen, Dr Med Sci
Specialist
PI on 1 active trial
KM
Kenneth R. Olivier, MD, MPH
ROCHESTER, MN
Specialist
PI on 1 active trial
MM
Myrofora Goutaki, PD, MD-PhD
Specialist
PI on 1 active trial
MM
Myrofora Goutaki, MD-PhD
Specialist
PI on 1 active trial
DD
Deniz Inal Ince, Prof. Dr.
Specialist
PI on 1 active trial
MD
Meral Boşnak Güçlü, Prof. Dr.
Specialist
PI on 5 active trials
HP
Hazal Sonbahar Ulu, MSc, PT
Specialist
PI on 1 active trial
HD
Hayriye Ugur Ozcelik, Prof. Dr.
Specialist
PI on 1 active trial
SM
Stephanie Davis, MD
Specialist
PI on 2 active trials
HM
Hazal Sonbahar Ulu, MSc
Specialist
PI on 1 active trial
SP
Scott Sagel, MD, PhD
AURORA, CO
Specialist
PI on 1 active trial
MM
Michael Loebinger, MD
Specialist
PI on 1 active trial
SD
Stephanie Davis
Specialist
PI on 1 active trial56 Primary ciliary dyskinesia, Kartagener type publications
PR
Priya Ryali
Specialist
PI on 1 active trial
RM
Romain Lazor, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Primary ciliary dyskinesia, Kartagener type.

Search all travel grants →NORD Financial Assistance ↗

Community

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Primary ciliary dyskinesia, Kartagener type

Are there clinical trials for Primary ciliary dyskinesia, Kartagener type?

Yes — 1 recruiting clinical trial is currently listed for Primary ciliary dyskinesia, Kartagener type on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Primary ciliary dyskinesia, Kartagener type?

25 specialists and care centers treating Primary ciliary dyskinesia, Kartagener type are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.