Pituitary deficiency

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ORPHA:101957E23.0
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65Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Sep 2026Phase 3 Long Term Safety Extension Study of LUM-201 in Children With Growth Hormone Deficiency

Lumos Pharma — PHASE3

TrialNOT YET RECRUITING
Apr 2026Phase 3 Study of LUM-201 in Children With Growth Hormone Deficiency

Lumos Pharma — PHASE3

TrialRECRUITING
Dec 2025A Study of GS3-007a for Oral Suspension in the Diagnosis of Adult Growth Hormone Deficiency (AGHD)

Changchun GeneScience Pharmaceutical Co., Ltd. — PHASE2

TrialNOT YET RECRUITING
Sep 2025Sleep Disorders in Hypothalamic and Pituitary Damage

Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau

TrialRECRUITING
Aug 2025Evaluating the Efficacy and Safety of GB08 Injection in Pediatric Patients With Growth Hormone Deficiency

Shenzhen Kexing Pharmaceutical Co., Ltd. — PHASE2, PHASE3

TrialNOT YET RECRUITING
Mar 2025Brain Irradiation for Childhood Cancer - Endocrine Monitoring During the First Years

University Hospital, Angers — NA

TrialNOT YET RECRUITING
Jan 2025A Study to Learn About Somatrogon in Patients With Pediatric Growth Hormone Deficiency (p GHD) in India.

Pfizer

TrialRECRUITING
Jan 2025Growth Hormone Replacement Therapy in Veterans With Mild Traumatic Brain Injury (mTBI) and Adult Growth Hormone Deficiency (AGHD)

VA Office of Research and Development — PHASE3

TrialRECRUITING
Dec 2024BELux Children OutcoME During A(@)Dulthood With GHD

Cliniques universitaires Saint-Luc- Université Catholique de Louvain — NA

TrialNOT YET RECRUITING
Dec 2024A Study to Follow Paediatric Participants With Growth Hormone Deficiency Treated With Somapacitan for Long Term Safety Information and Clinical Parameters

Novo Nordisk A/S

TrialENROLLING BY INVITATION

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Pituitary deficiency.

View clinical trials →

No actively recruiting trials found for Pituitary deficiency at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Pituitary deficiency community →

Specialists

Showing 25 of 65View all specialists →
EM
Elizabeth A Lawson, MD
Specialist
PI on 2 active trials
AM
Anne Klibanski, MD
BOSTON, MA
Specialist
PI on 2 active trials1 Pituitary deficiency publication
PM
Pamela U. Freda, MD
NEW YORK, NY
Specialist
PI on 4 active trials
AP
Annamaria Colao, MD, PhD
Specialist
PI on 3 active trials
DM
Deborah P Merke, M.D.
BETHESDA, MD
Specialist
PI on 7 active trials
MP
Mirjam Christ-Crain, Prof.
Specialist
PI on 3 active trials
TX
Tao Xie
Specialist
PI on 3 active trials33 Pituitary deficiency publications
XD
Xiaoping Luo, Doctor
ROCKVILLE, MD
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Pituitary deficiency.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Pituitary deficiencyForum →

No community posts yet. Be the first to share your experience with Pituitary deficiency.

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Latest news about Pituitary deficiency

Disease timeline:

New recruiting trial: Sleep Disorders in Hypothalamic and Pituitary Damage

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: A Post-Authorisation Safety Study (PASS) of Patients Treated With Lonapegsomatropin

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: Effects of GH and Lirglutide on AgRP

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: Chromosome 18 Clinical Research Center

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: Phase 3 Study of LUM-201 in Children With Growth Hormone Deficiency

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: Evaluation of the Propensity of Patients Under rhGH to Envision a Modification of Their Treatment Regimen Toward LAGH

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: A Study to Learn About Somatrogon in Patients With Pediatric Growth Hormone Deficiency (p GHD) in India.

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: Growth Hormone Replacement Therapy in Veterans With Mild Traumatic Brain Injury (mTBI) and Adult Growth Hormone Deficiency (AGHD)

A new clinical trial is recruiting patients for Pituitary deficiency

New recruiting trial: A US Non-interventional, Effectiveness and Safety Study of Patients Treated With SKYTROFA

A new clinical trial is recruiting patients for Pituitary deficiency

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Pituitary deficiency

Which specialists treat Pituitary deficiency?

25 specialists and care centers treating Pituitary deficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.