Neuromyelitis Optica

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2FDA treatments28Active trials39Specialists8Treatment centers9Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Neuromyelitis Optica is treated with 2 medications in our database, including Enspryng, UPLIZNA. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Genentech, Amgen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Neuromyelitis Optica treatment below.

Also known as:

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

NORD ↗

FDA & Trial Timeline

10 events
May 2026Rituximab Versus Ravulizumab, Inebilizumab, Satralizumab, and Eculizumab in NMOSD

Massachusetts General Hospital — PHASE4

TrialNOT YET RECRUITING
Apr 2026Observational Safety Study in Women With Neuromyelitis Optica Spectrum Disorder (NMOSD) Exposed to UPLIZNA® During Pregnancy

Amgen

TrialRECRUITING
Mar 2026A Study To Evaluate Pharmacokinetics, Efficacy, Safety, Tolerability, And Pharmacodynamics Of Satralizumab In Pediatric Patients With Aquaporin-4 Antibody Positive Neuromyelitis Optica Spectrum Disorder (NMOSD)

Hoffmann-La Roche — PHASE3

TrialRECRUITING
Jan 2026Autonomic Dysfunction in Neuromyelitis Optica Spectrum Disorder and Multiple Sclerosis : A Comparative Study

Mohamed Moshref abd alsattar

TrialNOT YET RECRUITING
Jan 2026Multiple Sclerosis Versus Neuromyelitis Optica Spectrum Disorder

Assiut University

TrialNOT YET RECRUITING
Jan 2026Modified Zipper Therapy for AQP4-IgG Positive Neuromyelitis Optica Spectrum Disorder

Tianjin Medical University General Hospital — PHASE4

TrialRECRUITING
Dec 2025Safety and Efficacy of BAFFR CART for Relapsed/ Refractory Neuromyelitis Optica Spectrum Disorder

Tianjin Medical University General Hospital — PHASE1, PHASE2

TrialNOT YET RECRUITING
Dec 2025Prospective Cohort Study of Neuromyelitis Optica Spectrum Disorders (NMOSD)

Xiamen Hospital of Traditional Chinese Medicine

TrialNOT YET RECRUITING
Oct 2025Efficacy and Safety of Monoclonal Antibody in Acute Phase of Neuromyelitis Optica Spectrum Disorder

First Affiliated Hospital of Chongqing Medical University

TrialNOT YET RECRUITING
Sep 2025Slow vs. Rapid Glucocorticoids Tapering With Inebilizumab in NMOSD

Tianjin Medical University General Hospital — PHASE3

TrialNOT YET RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

2 available

Enspryng

Satralizumab· Genentech

* Patient Copay Amount: As little as $0 per prescription * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Patients must have commercial (private) insurance; must

UPLIZNA

Inebilizumab· Amgen

* Patient Copay Amount: As little as $0 out-of-pocket for UPLIZNA and infusion costs * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Must be a resident of the

Clinical Trials

20 recruitingView all trials with filters →
Phase 34 trials
Efficacy and Safety of Divozilimab in Patients With Neuromyelitis Optica Spectrum Disorders (AQUARELLE)
Phase 3
Active
· Sites: Barnaul; Chelyabinsk +17 more · Age: 1899 yrs
A Study of MIL62 in Patients With Neuromyelitis Optica Spectrum Disorder (NMOSD)
Phase 3
Active
· Sites: Beijing, Beijing Municipality · Age: 1870 yrs
A Study To Evaluate Pharmacokinetics, Efficacy, Safety, Tolerability, And Pharmacodynamics Of Satralizumab In Pediatric Patients With Aquaporin-4 Antibody Positive Neuromyelitis Optica Spectrum Disorder (NMOSD)
Phase 3
Actively Recruiting
PI: Clinical Trials (Hoffmann-La Roche) · Sites: Denver, Colorado; Ciudad Autonoma Buenos Aires +10 more · Age: 211 yrs
Efficacy, Safety, PK, PD, and ADA of Eculizumab in Chinese Adults With NMOSD
Phase 3
Active
PI: Xiangjun Chen, M.D (Huashan Hospital) · Sites: Beijing; Dongguan +5 more · Age: 18130 yrs
Phase 42 trials
Long-term, Open-label, Safety Study of Inebilizumab in Neuromyelitis Optica Spectrum Disorder (NMOSD)
Phase 4
Active
PI: MD (Amgen) · Sites: Detroit, Michigan; Houston, Texas +9 more · Age: 1899 yrs
Modified Zipper Therapy for AQP4-IgG Positive Neuromyelitis Optica Spectrum Disorder
Phase 4
Actively Recruiting
· Sites: Tianjin · Age: 1880 yrs
Phase 22 trials
A Clinical Trial of BAT4406F Injection in Patients With Neuromyelitis Optica Spectrum Disorders
Phase 2
Active
PI: Xiangjun Chen, Doctor (Huashan Hospital) · Sites: Baotou; Beijing +43 more · Age: 1865 yrs
Study of Inebilizumab in Pediatric Subjects With Neuromyelitis Optica Spectrum Disorder
Phase 2
Actively Recruiting
PI: MD (Amgen) · Sites: La Jolla, California; Loma Linda, California +17 more · Age: 217 yrs
Other9 trials
Normal Chinese Lifespan Brain Charts Initiative (NCLBCI)
Enrolling by Invitation
PI: Yaou Liu, Doctor (Beijing Tiantan Hospital) · Sites: Beijing, Beijing Municipality · Age: 690 yrs
Monoclonal Antibody-Based Therapies for AQP4-Positive NMOSD
Actively Recruiting
· Sites: Wuhan, Hubei · Age: 1865 yrs
French Registry for Monitoring Pregnancies for Multiple Sclerosis
Actively Recruiting
PI: Sandra VUKUSIC, Prof. (Hospices Civils de Lyon) · Sites: Amiens; Annecy +46 more
Observational Safety Study in Women With Neuromyelitis Optica Spectrum Disorder (NMOSD) Exposed to UPLIZNA® During Pregnancy
Actively Recruiting
PI: MD (Amgen) · Sites: Aurora, Colorado · Age: 1599 yrs
Study of the Clinical and Radiological Impact of Ravulizumab in People With Neuromyelitis Optica Spectrum Disorder
Actively Recruiting
PI: Darin T. Okuda, MD (University of Texas Southwestern Medical Center) · Sites: Dallas, Texas · Age: 1899 yrs
Longitudinal Cortical Demyelination in Multiple Sclerosis and Related Disorders
Enrolling by Invitation
PI: Erin S Beck, MD, PhD (Icahn School of Medicine at Mount Sinai) · Sites: New York, New York · Age: 1899 yrs
CorEvitas SPHERES (Synergy of Prospective Health & Experimental Research for Emerging Solutions) Registry for Neuromyelitis Optica Spectrum Disorder (NMOSD)
Enrolling by Invitation
· Sites: Waltham, Massachusetts · Age: 1899 yrs
Registry of Patients With AQP4+ NMOSD Treated With Alexion C5 Inhibitor Therapies
Actively Recruiting
PI: Pablo Lopez (Hospital Aleman) · Sites: Washington D.C., District of Columbia; Boston, Massachusetts +31 more · Age: 1899 yrs
Comparative Study on AQP4 Antibody Detection Methods
Active
PI: Jinzhou Feng, Ph.D (First Affiliated Hospital of Chongqing Medical Uni) · Sites: Chongqing, Chongqing Municipality · Age: 1899 yrs

Specialists

Showing 25 of 39View all specialists →
HM
He Huang, MD
Hanzhou, Zhejiang
Specialist

Rare Disease Specialist

PI on 11 active trials
MP
Michael Levy, MD, PhD
Boston, Massachusetts
Specialist

Rare Disease Specialist

PI on 9 active trials
FM
Fu-Dong Shi, MD,PhD
Specialist
PI on 4 active trials
JS
Jerome De Seze
Specialist
PI on 1 active trial
ZD
Zhao yuan qi, Dr
Specialist
PI on 1 active trial
SO
Serkan Ozakbas
Specialist
PI on 1 active trial
PC
Philippe CABRE
Specialist
PI on 1 active trial
VS
Vahid Shaygannejad
Specialist
PI on 1 active trial
IS
Ilana Katz Sand
Specialist
PI on 1 active trial
PV
Pablo Villoslada
Specialist
PI on 1 active trial
YL
Yaou Liu
Specialist
PI on 1 active trial
SA
Susanna Asseyer
Specialist
PI on 1 active trial
EB
Erin S Beck
Specialist
PI on 1 active trial
HT
Hamdy EL tellawy
Specialist
PI on 1 active trial
HD
Huiqing Dong
Specialist
PI on 1 active trial
HL
Hongzeng Li
Specialist
PI on 1 active trial
QX
Quangang Xu
Specialist
PI on 1 active trial
NE
Noha A Abo Elfotoh
Specialist
PI on 1 active trial
FB
Fabio Buttari
Specialist
PI on 1 active trial
EK
Eric Klawiter
BOSTON, MA
Specialist
PI on 1 active trial
MM
Ming Lim, MB
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

9 grants

PAN Foundation Neuromyelitis Optica Spectrum Disorder Patient Assistance Grant

PAN Foundation

Applicants must be receiving treatment for NMOSD in the United States, have health insurance covering a qualifying medication, and have an income at or below 500% of the Federal Poverty Level. This copay grant provides an initial $4,000 with a total annual cap of $8,000 for covered prescription costs.

Apply ↗Up to $8,000

Amgen SupportPlus Patient Support Program

Amgen

Apply ↗

Amgen Patient Assistance Program

Amgen

The provided text contains no content to analyze for eligibility requirements. The document title and source suggest a collection of financial aid resources for patients with bone marrow failure diseases.

Apply ↗

Genentech Access to Care

Genentech

Apply ↗

Genentech Patient Assistance

Genentech

Apply ↗

Amgen Assist 360

Amgen

Apply ↗

NORD RareCare Patient Assistance Program

National Organization for Rare Disorders, Inc. (NORD)

Apply ↗

Enspryng Co-Pay Program

The Assistance Fund

Apply ↗

AMGEN Assist

Amgen

Apply ↗

Community

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Latest news about Neuromyelitis Optica

Disease timeline:

New recruiting trial: Registry of Patients With AQP4+ NMOSD Treated With Alexion C5 Inhibitor Therapies

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: The Safety and Efficacy of NouvSoma001 in Neuromyelitis Optica Spectrum Disorders

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Observational Safety Study in Women With Neuromyelitis Optica Spectrum Disorder (NMOSD) Exposed to UPLIZNA® During Pregnancy

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: A Study To Evaluate Pharmacokinetics, Efficacy, Safety, Tolerability, And Pharmacodynamics Of Satralizumab In Pediatric Patients With Aquaporin-4 Antibody Positive Neuromyelitis Optica Spectrum Disorder (NMOSD)

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Modified Zipper Therapy for AQP4-IgG Positive Neuromyelitis Optica Spectrum Disorder

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Study of the Clinical and Radiological Impact of Ravulizumab in People With Neuromyelitis Optica Spectrum Disorder

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Study of Inebilizumab in Pediatric Subjects With Neuromyelitis Optica Spectrum Disorder

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Frequency of FCGR3A Gene Polymorphisms in Patients With Neuromyelitis Optica Spectrum Disorders, Anti-oligodendrocyte Myelin Protein Antibody Disease, and Multiple Sclerosis.

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Performance and Safety of a Digital Tool for Unsupervised Self-assessment of NMOSD

A new clinical trial is recruiting patients for Neuromyelitis Optica

New recruiting trial: Clinical Study of B001 Injection in Subjects With Neuromyelitis Optic Spectrum Disorder (NMOSD)

A new clinical trial is recruiting patients for Neuromyelitis Optica

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuromyelitis Optica

What is Neuromyelitis Optica?

Neuromyelitis Optica is treated with 2 medications in our database, including Enspryng, UPLIZNA. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Genentech, Amgen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Neuromyelitis Optica treatment below.

How is Neuromyelitis Optica inherited?

Neuromyelitis Optica follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Neuromyelitis Optica typically begin?

Typical onset of Neuromyelitis Optica is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Neuromyelitis Optica?

Yes — 20 recruiting clinical trials are currently listed for Neuromyelitis Optica on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Neuromyelitis Optica?

25 specialists and care centers treating Neuromyelitis Optica are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Neuromyelitis Optica?

2 FDA-approved treatments and 2 patient support programs are currently tracked on UniteRare for Neuromyelitis Optica. See the treatments and support programs sections for copay assistance, eligibility, and contact details.