Acute disseminated encephalomyelitis | UniteRare Disease Library

Overview

Also known as:

ADEM Acute disseminated encephalitis Acute demyelinating encephalomyelitis

Clinical phenotype terms— hover any for plain English:

Diffuse white matter abnormalitiesHP:0007204CNS demyelinationHP:0007305EEG with generalized slow activityHP:0010845Abnormal basal ganglia morphologyHP:0002134Abnormal spinal cord morphologyHP:0002143Cerebral edemaHP:0002181Abnormal periventricular white matter morphologyHP:0002518MyelitisHP:0012486

Orphanet ↗NORD ↗

FDA & Trial Timeline

9 events

Nov 2025High-throughput Omic Technology for Identification of Biomarkers of Relapsing Acute Disseminated Encephalomyelitis in Immune Cell Network

University Hospital, Angers — NA

TrialRECRUITING

Sep 2025ADAM'S Prognostic Markers

Assiut University

TrialNOT YET RECRUITING

May 2025Assessment of Transcranial Alternating Current Stimulation's Clinical Efficacy in Treating Cognitive Impairment of Idiopathic Inflammatory Demyelinating Diseases

Xuanwu Hospital, Beijing — NA

TrialRECRUITING

Aug 2024Efficacy and Safety of Calculus Bovis Sativus (CBS) for Idiopathic Inflammatory Demyelinating Disease (CBSinIIDD)

Tongji Hospital — NA

TrialRECRUITING

Jul 2024Biomarkers in Autoimmune Disease of Nervous System

Tongji Hospital

TrialRECRUITING

Jan 2024Sun Yat-Sen Cohort of CNS Idiopathic Inflammatory Demyelinating Diseases

Sun Yat-Sen Memorial Hospital of Sun Yat-Sen University

TrialRECRUITING

Dec 2021China National Registry of Neuro-Inflammatory Diseases

Beijing Tiantan Hospital

TrialRECRUITING

Dec 2020National, Multicentric Registry Study on Neuroimmunological Diseases in China

Xuanwu Hospital, Beijing

TrialRECRUITING

May 2006Biobank For MS And Other Demyelinating Diseases

Accelerated Cure Project for Multiple Sclerosis

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Acute disseminated encephalomyelitis.

8 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

8 recruitingView all trials with filters →

N/A3 trials

Assessment of Transcranial Alternating Current Stimulation's Clinical Efficacy in Treating Cognitive Impairment of Idiopathic Inflammatory Demyelinating Diseases

N/A

Actively Recruiting

· Sites: Beijing, Beijing Municipality · Age: 18–60 yrs

High-throughput Omic Technology for Identification of Biomarkers of Relapsing Acute Disseminated Encephalomyelitis in Immune Cell Network

N/A

Actively Recruiting

PI: Nail BENALLEGUE, DOCTOR (University Hospital, Angers) · Sites: Angers; Brest +4 more · Age: 18–99 yrs

Efficacy and Safety of Calculus Bovis Sativus (CBS) for Idiopathic Inflammatory Demyelinating Disease (CBSinIIDD)

N/A

Actively Recruiting

PI: Wei Wang, MD (Tongji Hospital) · Sites: Wuhan, Hubei · Age: 18–99 yrs

Other5 trials

Biobank For MS And Other Demyelinating Diseases

Active

PI: Benjamin Greenberg, M.D., M.H.S. (University of Texas) · Sites: Phoenix, Arizona; Stanford, California +8 more

Biomarkers in Autoimmune Disease of Nervous System

Actively Recruiting

PI: Dai-shi Tian, MD (Tongji Hospital) · Sites: Wuhan · Age: 18–99 yrs

China National Registry of Neuro-Inflammatory Diseases

Actively Recruiting

· Sites: Beijing, Beijing Municipality

Sun Yat-Sen Cohort of CNS Idiopathic Inflammatory Demyelinating Diseases

Actively Recruiting

· Sites: Guangzhou, Guangdong · Age: 18–65 yrs

National, Multicentric Registry Study on Neuroimmunological Diseases in China

Actively Recruiting

PI: Junwei Hao, MD (Xuanwu Hospital, Beijing) · Sites: Beijing, Beijing Municipality

Specialists

25 foundView all specialists →

Satya Narayan Singh

PLANTATION, FL

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Cynthia X Wang

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Eleni Clare

PORTLAND, OR

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Hirofumi Ochi

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Sudipto Chakraborty

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Akash Narayan

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Debabrata Chakraborty

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Bhaskar Ukil

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Nalakath Arakkal Uvais

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Serena Massa

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Adriana Fracchiolla

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Cosimo Neglia

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Alberto Argentiero

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Wei Wang, MD

Specialist

Acute transverse myelitis Autoimmune/inflammatory optic neuropathy Chronic encephalitis+4 more

PI on 2 active trials

Active trials Directions Travel grants

Dai-shi Tian, MD

Specialist

Acute inflammatory demyelinating polyradiculoneuropathy Acute transverse myelitis Autoimmune encephalitis+10 more

PI on 2 active trials

Active trials Directions Travel grants

Junwei Hao, MD

Specialist

Acute transverse myelitis Autoimmune encephalitis Chronic encephalitis+4 more

PI on 3 active trials

Active trials Directions Travel grants

Benjamin Greenberg, M.D., M.H.S.

Specialist

Acute transverse myelitis Isolated optic neuritis Tumor of cranial and spinal nerves

PI on 1 active trial

Active trials Directions Travel grants

Sandra Bigi, PD MD

Specialist

Acute transverse myelitis Autoimmune encephalitis Autoimmune/inflammatory optic neuropathy+7 more

PI on 1 active trial

Active trials Directions Travel grants

Nail BENALLEGUE, DOCTOR

Specialist

Chronic encephalitis

PI on 1 active trial

Active trials Directions Travel grants

Benjamin Greenberg, MD. MHS

Specialist

Acute transverse myelitis Pediatric multiple sclerosis Tumor of cranial and spinal nerves

PI on 1 active trial

Active trials Directions Travel grants

Malgorzata Wolska-Krawczyk

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Takeaki Kato

Specialist

1 Acute disseminated encephalomyelitis publication

Directions Travel grants

Pierre MEYER, MD

Specialist

Rare genetic immune disease Rare hemorrhagic disorder Rare viral disease

PI on 1 active trial

Active trials Directions Travel grants

Patrícia de Oliveira

Specialist

PI on 1 active trial

Active trials Directions Travel grants

Marwa Alsaid Ahmed, resident doctor

Specialist

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Acute disseminated encephalomyelitis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Acute disseminated encephalomyelitis

Disease timeline:

New recruiting trial: Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: High-throughput Omic Technology for Identification of Biomarkers of Relapsing Acute Disseminated Encephalomyelitis in Immune Cell Network

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: Biomarkers in Autoimmune Disease of Nervous System

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: National, Multicentric Registry Study on Neuroimmunological Diseases in China

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: Sun Yat-Sen Cohort of CNS Idiopathic Inflammatory Demyelinating Diseases

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: China National Registry of Neuro-Inflammatory Diseases

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: Efficacy and Safety of Calculus Bovis Sativus (CBS) for Idiopathic Inflammatory Demyelinating Disease (CBSinIIDD)

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

New recruiting trial: Assessment of Transcranial Alternating Current Stimulation's Clinical Efficacy in Treating Cognitive Impairment of Idiopathic Inflammatory Demyelinating Diseases

A new clinical trial is recruiting patients for Acute disseminated encephalomyelitis

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Acute disseminated encephalomyelitis

Are there clinical trials for Acute disseminated encephalomyelitis?

Yes — 8 recruiting clinical trials are currently listed for Acute disseminated encephalomyelitis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Acute disseminated encephalomyelitis?

25 specialists and care centers treating Acute disseminated encephalomyelitis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.