Juvenile polymyositis

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ORPHA:93568M33.2
Who is this for?
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29Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Sep 2023Efficacy in Controlling Myopia in Young Children Using a Novel Spectacle Lens

SightGlass Vision, Inc. — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Juvenile polymyositis.

View clinical trials →

No actively recruiting trials found for Juvenile polymyositis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Juvenile polymyositis community →

Specialists

Showing 25 of 29View all specialists →
MM
Meiping Lu, M.D
Specialist
PI on 1 active trial
AM
Ann M. Reed, MD
Specialist
PI on 1 active trial1 Juvenile polymyositis publication
NM
Nicolino Ruperto, MD, MPH
Specialist
PI on 2 active trials
CM
Chester V. Oddis, MD
PITTSBURGH, PA
Specialist
PI on 2 active trials
LM
Laura Schanberg, MD
DURHAM, NC
Specialist
PI on 2 active trials
AM
Adam I Schiffenbauer, M.D.
WASHINGTON, DC
Specialist
PI on 4 active trials
LM
Lisa G Rider, M.D.
AURORA, CO
Specialist
PI on 4 active trials
CD
Cyril GITIAUX, Doctor
Specialist
PI on 1 active trial
LM
Lauren M. Pachman, MD
CHICAGO, IL
Specialist
PI on 1 active trial1 Juvenile polymyositis publication
CM
Carol A. Wallace, MD
Specialist
PI on 2 active trials
HM
Hanna Kim, M.D.
Specialist
PI on 1 active trial
AP
Anthony P Fernandez, MD, PhD
Specialist
PI on 1 active trial
NP
Nico M Wulffraat, MD, PhD
Specialist
PI on 1 active trial
CM
Christy Sandborg, MD
PALO ALTO, CA
Specialist
PI on 1 active trial
SD
Sirui Yang, doctor
Specialist
PI on 1 active trial
FP
Fiona van der KLis, MD, PhD
Specialist
PI on 1 active trial
AM
Alison Ehrlich, MD
CHEVY CHASE, MD
Specialist
PI on 2 active trials
CM
Catherine Gordon, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Juvenile polymyositis.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Juvenile polymyositisForum →

No community posts yet. Be the first to share your experience with Juvenile polymyositis.

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Latest news about Juvenile polymyositis

Disease timeline:

New trial: Efficacy in Controlling Myopia in Young Children Using a Novel Spectacle Lens

Phase NA trial recruiting. Single vision, impact-resistant spectacle lenses; Test Arm

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Juvenile polymyositis

Which specialists treat Juvenile polymyositis?

25 specialists and care centers treating Juvenile polymyositis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.