Rare systemic disease

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ORPHA:182222
Who is this for?
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7Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Rare systemic disease.

View clinical trials →

No actively recruiting trials found for Rare systemic disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare systemic disease community →

Specialists

7 foundView all specialists →
JR
Joanna Robson
Specialist
PI on 1 active trial9 Rare systemic disease publications
PM
Pierre Quartier-dit-Maire, MD
Specialist
PI on 1 active trial
CM
Carol A. Wallace, MD
Specialist
PI on 2 active trials
MP
Marie-Elise TRUCHETET, MD, PhD
Specialist
PI on 3 active trials
NR
Nilsa Ramirez
COLUMBUS, OH
Specialist
PI on 1 active trial16 Rare systemic disease publications
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare systemic disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare systemic disease

No recent news articles for Rare systemic disease.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare systemic disease

Which specialists treat Rare systemic disease?

7 specialists and care centers treating Rare systemic disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.