Juvenile dermatomyositis

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ORPHA:93672M33.0
Who is this for?
Show terms as
1Active trials28Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

PoikilodermaHP:0001029
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
May 2025Comparison Of The Effects Of Two Different Exercise Training Based On Internal And External Focus In Children and Adolescents With Rheumatic Diseases

Istanbul University - Cerrahpasa — NA

TrialENROLLING BY INVITATION

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Juvenile dermatomyositis.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
N/A1 trial
Comparison Of The Effects Of Two Different Exercise Training Based On Internal And External Focus In Children and Adolescents With Rheumatic Diseases
N/A
Enrolling by Invitation
· Sites: Istanbul, Türkiye · Age: 618 yrs

Specialists

Showing 25 of 28View all specialists →
MM
Meiping Lu, M.D
Specialist
PI on 1 active trial
AM
Ann M. Reed, MD
Specialist
PI on 1 active trial1 Juvenile dermatomyositis publication
NM
Nicolino Ruperto, MD, MPH
Specialist
PI on 2 active trials
CM
Chester V. Oddis, MD
PITTSBURGH, PA
Specialist
PI on 2 active trials
LM
Laura Schanberg, MD
DURHAM, NC
Specialist
PI on 2 active trials
AM
Adam I Schiffenbauer, M.D.
WASHINGTON, DC
Specialist
PI on 4 active trials
LM
Lauren M. Pachman, MD
CHICAGO, IL
Specialist
PI on 1 active trial1 Juvenile dermatomyositis publication
AM
Andrew L Mammen, M.D.
BALTIMORE, MD
Specialist
PI on 3 active trials
CD
Cyril GITIAUX, Doctor
Specialist
PI on 1 active trial
LM
Lisa G Rider, M.D.
AURORA, CO
Specialist
PI on 4 active trials
HM
Hanna Kim, M.D.
Specialist
PI on 1 active trial
CM
Christy Sandborg, MD
PALO ALTO, CA
Specialist
PI on 1 active trial
AP
Anthony P Fernandez, MD, PhD
Specialist
PI on 1 active trial
FP
Fiona van der KLis, MD, PhD
Specialist
PI on 1 active trial
NP
Nico M Wulffraat, MD, PhD
Specialist
PI on 1 active trial
NM
Norman T Illowite, MD
Specialist
PI on 1 active trial
SD
Sirui Yang, doctor
Specialist
PI on 1 active trial
AM
Alison Ehrlich, MD
CHEVY CHASE, MD
Specialist
PI on 2 active trials
BM
Brian Feldman, MD, MSc
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Juvenile dermatomyositis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Juvenile dermatomyositis

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Juvenile dermatomyositis

Are there clinical trials for Juvenile dermatomyositis?

Yes — 1 recruiting clinical trial is currently listed for Juvenile dermatomyositis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Juvenile dermatomyositis?

25 specialists and care centers treating Juvenile dermatomyositis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.