Small cell lung cancer

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ORPHA:70573OMIM:182280C34.9
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16FDA treatments8Treatment centers12Financial resources

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Small cell lung cancer (SCLC), also known as oat cell carcinoma or small cell carcinoma of the lung, is an aggressive type of lung cancer that starts in the cells lining the airways of the lungs. It is called 'small cell' because the cancer cells look small under a microscope. Unlike other types of lung cancer, SCLC tends to grow and spread very quickly to other parts of the body, including the lymph nodes, brain, liver, bones, and adrenal glands. This fast-spreading nature means it is often diagnosed at an advanced stage. The most common symptoms include a persistent cough, coughing up blood, chest pain, shortness of breath, and unexplained weight loss. Some people also experience hoarseness, repeated lung infections, or swelling in the face and neck caused by pressure on nearby blood vessels. In some cases, SCLC can cause a group of problems called paraneoplastic syndromes, where the cancer triggers the immune system to accidentally attack the nervous system or other organs. Treatment usually involves a combination of chemotherapy and radiation therapy. Immunotherapy drugs, particularly atezolizumab (Tecentriq) and durvalumab (Imfinzi), have been approved by the FDA and are now used alongside chemotherapy for certain patients. Surgery is rarely an option because the cancer has usually spread by the time it is found. While treatment can shrink the cancer and improve quality of life, SCLC is very difficult to cure, and research into new therapies is ongoing.

Also known as:

Key symptoms:

Persistent or worsening coughCoughing up blood or rust-colored mucusChest pain or tightnessShortness of breathUnexplained weight lossExtreme tiredness or fatigueHoarse voiceSwelling of the face, neck, or armsRepeated chest infections or pneumoniaLoss of appetiteBone pain if cancer has spread to bonesHeadaches, confusion, or seizures if cancer has spread to the brainMuscle weakness or coordination problems due to paraneoplastic syndromesLow sodium levels causing confusion or nausea (a paraneoplastic effect)

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗OMIM ↗NORD ↗

Treatments

16 available

Taxol

Paclitaxel· Bristol-Myers Squibb Pharmaceutical Research Institute■ Boxed Warning

in combination with cisplatin, is indicated for the first-line treatment of non-small cell lung cancer in patients who are not candidates for potentially curative surgery and/or radiation therapy

IMFINZI

durvalumab· AstraZeneca Pharmaceuticals LP
as a single agent, for the treatment of adult patients with limited-stage small cell lung cancer (LS-SCLC) whose disease has not progressed following concurrent platinum-based chemotherapy and radiati

as a single agent, for the treatment of adult patients with limited-stage small cell lung cancer (LS-SCLC) whose disease has not progressed following concurrent platinum-based chemotherapy and radiation therapy

CYRAMZA

ramucirumab· Eli Lilly and Company

in combination with erlotinib, for first-line treatment of adults with metastatic non-small cell lung cancer with epidermal growth factor receptor (EGFR) exon 19 deletions or exon 21 (L858R) mutations

Enhertu

fam-trastuzumab deruxtecan-nxki· Daiichi Sankyo, Inc.■ Boxed WarningAccelerated Approval
as monotherapy for the treatment of adult patients with unresectable or metastatic non-small cell lung cancer (NSCLC) whose tumors have activating HER2 (ERBB2) mutations and who have received a prior

as monotherapy for the treatment of adult patients with unresectable or metastatic non-small cell lung cancer (NSCLC) whose tumors have activating HER2 (ERBB2) mutations and who have received a prior systemic therapy

Gilotrif

afatinib· Boehringer Ingelheim Pharmaceuticals, Inc.

Treatment of patients with metastatic, squamous NSCLC progressing after platinum-based chemotherapy

Braftovi

encorafenib· Array BioPharma Inc. (a wholly owned subsidiary of Pfizer Inc.)

in combination with binimetinib, for the treatment of adult patients with metastatic non-small cell lung cancer (NSCLC) with a BRAF V600E mutation, as detected by an FDA-authorized test

OPDIVO

NIVOLUMAB· E.R. Squibb & Sons, L.L.C.
adult patients with metastatic NSCLC and progression on or after platinum-based chemotherapy. Patients with EGFR or ALK genomic tumor aberrations should have disease progression on FDA-approved therap

adult patients with metastatic NSCLC and progression on or after platinum-based chemotherapy. Patients with EGFR or ALK genomic tumor aberrations should have disease progression on FDA-approved therapy for these aberrations prior to receiving OPDIVO QVANTIG

Tagrisso

osimertinib· AstraZeneca Pharmaceuticals LP
adjuvant therapy after tumor resection in adult patients with non-small cell lung cancer (NSCLC) whose tumors have epidermal growth factor receptor (EGFR) exon 19 deletions or exon 21 L858R mutations,

adjuvant therapy after tumor resection in adult patients with non-small cell lung cancer (NSCLC) whose tumors have epidermal growth factor receptor (EGFR) exon 19 deletions or exon 21 L858R mutations, as detected by an FDA-approved test

Abraxane

paclitaxel protein-bound particles· Abraxis BioScience, LLC■ Boxed Warning
ABRAXANE is indicated for the first-line treatment of locally advanced or metastatic non-small cell lung cancer, in combination with carboplatin, in patients who are not candidates for curative surger

ABRAXANE is indicated for the first-line treatment of locally advanced or metastatic non-small cell lung cancer, in combination with carboplatin, in patients who are not candidates for curative surgery or radiation therapy.

KRAZATI

ADAGRASIB· Mirati Therapeutics, IncAccelerated Approval
As a single agent, for the treatment of adult patients with KRAS G12C-mutated locally advanced or metastatic NSCLC, as determined by an FDA-approved test, who have received at least one prior systemic

As a single agent, for the treatment of adult patients with KRAS G12C-mutated locally advanced or metastatic NSCLC, as determined by an FDA-approved test, who have received at least one prior systemic therapy.

Imjudo

tremelimumab-actl· AstraZeneca Pharmaceuticals LP
in combination with durvalumab and platinum-based chemotherapy for the treatment of adult patients with metastatic non-small cell lung cancer (NSCLC) with no sensitizing epidermal growth factor recept

in combination with durvalumab and platinum-based chemotherapy for the treatment of adult patients with metastatic non-small cell lung cancer (NSCLC) with no sensitizing epidermal growth factor receptor (EGFR) mutation or anaplastic lymphoma kinase (ALK) genomic tumor aberrations

KEYTRUDA

pembrolizumab· MSD International Business GmbH

in combination with carboplatin and either paclitaxel or paclitaxel protein-bound, as first-line treatment of adult patients with metastatic squamous NSCLC

Yervoy

ipilimumab· Bristol-Myers Squibb Company
Treatment of adult patients with metastatic non-small cell lung cancer expressing PD-L1 (≥1%) as determined by an FDA-approved test, with no EGFR or ALK genomic tumor aberrations, as first-line treatm

Treatment of adult patients with metastatic non-small cell lung cancer expressing PD-L1 (≥1%) as determined by an FDA-approved test, with no EGFR or ALK genomic tumor aberrations, as first-line treatment in combination with nivolumab

Zepzelca

lurbinectedin· Jazz Pharmaceuticals Ireland LimitedOrphan Drug
in combination with atezolizumab or atezolizumab and hyaluronidase-tqjs, for the maintenance treatment of adult patients with extensive-stage small cell lung cancer (ES-SCLC) whose disease has not pro

in combination with atezolizumab or atezolizumab and hyaluronidase-tqjs, for the maintenance treatment of adult patients with extensive-stage small cell lung cancer (ES-SCLC) whose disease has not progressed after first-line induction therapy with atezolizumab or atezolizumab and hyaluronidase-tqjs, carboplatin and etoposide

Imdelltra

tarlatamab-dlle· Amgen Inc.■ Boxed WarningOrphan Drug

treatment of adult patients with extensive stage small cell lung cancer (ES-SCLC) with disease progression on or after platinum-based chemotherapy

TECENTRIQ

atezolizumab· Genentech, Inc.Orphan Drug

TECENTRIQ�, in combination with carboplatin and etoposide, is indicated for the first-line treatment of adult patients with extensive-stage small cell lung cancer (ES-SCLC)

No actively recruiting trials found for Small cell lung cancer at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Small cell lung cancer community →

Specialists

25 foundView all specialists →
AS
Anurag Singh
Specialist
PI on 7 active trials398 Small cell lung cancer publications
OM
Olivier MOLINIER, MD
Specialist
PI on 1 active trial
SM
Sant P Chawla, MD
SANTA MONICA, CA
Specialist
PI on 5 active trials
MM
Miguel Villalona, MD
Specialist
PI on 2 active trials
PJ
Paul J Jannetto
Specialist
PI on 1 active trial
HM
Haiyi Jiang, M.D.
Tucson, Arizona
Specialist

Rare Disease Specialist

TH
Te-Chun Hsia
Specialist
PI on 1 active trial37 Small cell lung cancer publications
LM
Lu sun, M.D.
Specialist
PI on 1 active trial
AM
Andrei M Iagaru, MD
STANFORD, CA
Specialist
PI on 1 active trial1 Small cell lung cancer publication
CP
Chih-Hsin Yang, MD, PhD
Specialist
PI on 1 active trial
N(
Nicholas W Bucknell, MBBS (hons)
Specialist
PI on 1 active trial
MM
María Sereno Moyano, Medicine
Specialist
PI on 1 active trial
WE
Wafik El-Deiry
Specialist
PI on 1 active trial
JB
Joan M Bull
HOUSTON, TX
Specialist
PI on 1 active trial
GG
Giuseppe Giaccone
BETHESDA, MD
Specialist
PI on 3 active trials
AT
Anne Traynor
CASSOPOLIS, MI
Specialist
PI on 2 active trials
NL
Nathan Levitan
CLEVELAND, OH
Specialist
PI on 1 active trial
SJ
Salma Jabbour
NEW BRUNSWICK, NJ
Specialist
PI on 1 active trial
JC
jiuwei cui
Specialist
PI on 1 active trial
JH
Ji-Youn Han
Specialist
PI on 2 active trials
AJ
Aminah Jatoi
ROCHESTER, MN
Specialist
PI on 1 active trial

Treatment Centers

8 centers
⚗️ Trial Site

Research Site

📍 Los Angeles, California

👤 AstraZeneca Clinical Study Information Center

⚗️ Trial Site

Cedars Sinai Medical Center

📍 Los Angeles, California

👤 Janssen Research & Development, LLC Clinical Trial

⚗️ Trial Site

Dana-Farber Cancer Institute

📍 Boston, Massachusetts

👤 Ann (Annie) W Silk

👤 Matthew Frigault, MD

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

Financial Resources

12 resources
Taxol(Paclitaxel)Bristol-Myers Squibb Pharmaceutical Research Institute
IMFINZI(durvalumab)AstraZeneca Pharmaceuticals LP
CYRAMZA(ramucirumab)Eli Lilly and Company
Enhertu(fam-trastuzumab deruxtecan-nxki)Daiichi Sankyo, Inc.
Braftovi(encorafenib)Array BioPharma Inc. (a wholly owned subsidiary of Pfizer Inc.)
OPDIVO(NIVOLUMAB)E.R. Squibb & Sons, L.L.C.
Tagrisso(osimertinib)AstraZeneca Pharmaceuticals LP
Imjudo(tremelimumab-actl)AstraZeneca Pharmaceuticals LP
Yervoy(ipilimumab)Bristol-Myers Squibb Company
Zepzelca(lurbinectedin)Jazz Pharmaceuticals Ireland Limited
Imdelltra(tarlatamab-dlle)Amgen Inc.
TECENTRIQ(atezolizumab)Genentech, Inc.

Travel Grants

No travel grants are currently matched to Small cell lung cancer.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Small cell lung cancer

4 articles
Clinical trialCLINICALTRIALSApr 24, 2026
Trial Now Recruiting: A Study to Evaluate the Efficacy and Safety of Sutetinib Maleate Capsule in Locally Advanced or Metastatic NSCLC (NCT06010329)
Researchers are testing a new cancer drug called sutetinib maleate in people with advanced lung cancer that has specific uncommon genetic mutations. This is a P
Clinical trialCLINICALTRIALSApr 24, 2026
Trial Now Recruiting: A Study of BH-30643 in Subjects With Locally Advanced or Metastatic NSCLC Harboring EGFR and/or HER2 Mutations (NCT06706076)
Researchers are testing a new drug called BH-30643 for advanced lung cancer patients whose tumors have specific genetic mutations (EGFR or HER2). The study will
Clinical trialCLINICALTRIALSApr 21, 2026
Trial Now Recruiting: Neoadjuvant Umbrella Trial for Patients With Unresectable Stage III NSCLC Harboring Rare Mutations. (NCT06563999)
Researchers are looking for patients with advanced lung cancer (stage III) that cannot be removed with surgery and has unusual genetic mutations. The study will
Clinical trialCLINICALTRIALSApr 14, 2026
Trial Now Recruiting: Study of High-Precision Evaluation of Molecular ResiduaL Disease Through a PlatfOrm for Cancer TracKing and Interception (SHERLOCK) (NCT07524114)
Researchers are recruiting 7,000 cancer patients to test a new way of detecting cancer that comes back after treatment. By analyzing blood, tissue, and other bo
See all news about Small cell lung cancer

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What stage is my cancer and what does that mean for my treatment options?,Should I have my tumor tested for specific genetic changes or biomarkers that might affect treatment?,Am I eligible for any clinical trials testing new treatments for SCLC?,What are the most likely side effects of the treatment plan you are recommending, and how will they be managed?,Should I have radiation to my brain to prevent the cancer from spreading there?,What signs or symptoms should prompt me to go to the emergency room right away?,What palliative care or supportive care services are available to help me manage symptoms and maintain quality of life?

Common questions about Small cell lung cancer

What is Small cell lung cancer?

Small cell lung cancer (SCLC), also known as oat cell carcinoma or small cell carcinoma of the lung, is an aggressive type of lung cancer that starts in the cells lining the airways of the lungs. It is called 'small cell' because the cancer cells look small under a microscope. Unlike other types of lung cancer, SCLC tends to grow and spread very quickly to other parts of the body, including the lymph nodes, brain, liver, bones, and adrenal glands. This fast-spreading nature means it is often diagnosed at an advanced stage. The most common symptoms include a persistent cough, coughing up blood

How is Small cell lung cancer inherited?

Small cell lung cancer follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Small cell lung cancer typically begin?

Typical onset of Small cell lung cancer is adult. Age of onset can vary across affected individuals.

Which specialists treat Small cell lung cancer?

25 specialists and care centers treating Small cell lung cancer are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Small cell lung cancer?

10 patient support programs are currently tracked on UniteRare for Small cell lung cancer. See the treatments and support programs sections for copay assistance, eligibility, and contact details.