Rare tumor

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ORPHA:98057
Who is this for?
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44Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

4 events
Apr 2020Prospective Study of MAstectomy With Reconstruction Including Robot Endoscopic Surgery

Severance Hospital — NA

TrialACTIVE NOT RECRUITING
Dec 2019Study to Evaluate Safety and Antitumor Activity of Lete-Cel (GSK3377794) in HLA-A2+ Participants With NY-ESO-1 Positive Previously Treated Advanced (Metastatic or Unresectable) Synovial Sarcoma or Myxoid/Round Cell Liposarcoma

USWM CT, LLC — PHASE2

TrialACTIVE NOT RECRUITING
Dec 2019Study to Evaluate Safety and Antitumor Activity of Lete-Cel (GSK3377794) in HLA-A2+ Participants With NY-ESO-1 Positive Previously Untreated Advanced (Metastatic or Unresectable) Synovial Sarcoma and Myxoid/Round Cell Liposarcoma

USWM, LLC (dba US WorldMeds) — PHASE2

TrialACTIVE NOT RECRUITING
May 2018Adoptive Transfer of Tumor Infiltrating Lymphocytes for Metastatic Uveal Melanoma

Udai Kammula — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Rare tumor.

View clinical trials →

No actively recruiting trials found for Rare tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare tumor community →

Specialists

Showing 25 of 44View all specialists →
AA
Andrea B Apolo
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 4 active trials
ML
Morgan Lam
Specialist
PI on 3 active trials9 Rare tumor publications
SM
Silvia Stacchiotti, MD
Specialist
PI on 4 active trials
AS
Ann (Annie) W Silk
Los Angeles, California
Specialist

Rare Disease Specialist

PI on 1 active trial
SD
Stefan Fröhling, Prof. Dr.
Specialist
PI on 2 active trials
SP
Staci M Peron, Ph.D.
Bethesda, Maryland
Specialist

Rare Disease Specialist

PI on 8 active trials
MD
Mary F Wedekind Malone, D.O.
Bethesda, Maryland
Specialist

Rare Disease Specialist

PI on 3 active trials
AP
Anna Jansen, MD, PhD
Silver Spring, Maryland
Specialist

Rare Disease Specialist

PI on 2 active trials
RM
Ranjana Advani, MD
STANFORD, CA
Specialist
PI on 3 active trials
GM
Gianni Bisogno, MD
Specialist
PI on 2 active trials
AT
Amanda M Termuhlen
MINNEAPOLIS, MN
Specialist
PI on 1 active trial1 Rare tumor publication
EP
elif polat
Specialist
PI on 1 active trial5 Rare tumor publications
UM
Udai S Kammula, MD
Pittsburgh, Pennsylvania
Specialist

Rare Disease Specialist

PI on 2 active trials
RD
Richard Schlenk, Prof. Dr.
CLEVELAND, OH
Specialist
PI on 1 active trial
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial
PM
Pierluigi Porcu, MD
PHILADELPHIA, PA
Specialist
PI on 2 active trials

Treatment Centers

8 centers
⚗️ Trial Site

Massachusetts General Hospital

📍 Boston, Massachusetts

👤 Matthew Frigault, MD

👤 Janssen Research & Development, LLC Clinical Trial

⚗️ Trial Site

Washington University

📍 St Louis, Missouri

👤 Sawa M Ito, MD, PhD

👤 Anthony A. Amato, MD

⚗️ Trial Site

Oregon Health and Science University

📍 Portland, Oregon

⚗️ Trial Site

Dana Farber Cancer Institute

📍 Boston, Massachusetts

👤 Janssen Research & Development, LLC Clinical Trial

⚗️ Trial Site

Seoul National University Hospital

📍 Seoul, Seoul

⚗️ Trial Site

University of Chicago

📍 Chicago, Illinois

⚗️ Trial Site

Duke University Medical Center

📍 Durham, North Carolina

⚗️ Trial Site

Mayo Clinic Jacksonville

📍 Jacksonville, Florida

Travel Grants

No travel grants are currently matched to Rare tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Rare tumorForum →

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Latest news about Rare tumor

Disease timeline:

New trial: Study to Evaluate Safety and Antitumor Activity of Lete-Cel (GSK3377794) in HLA-A2+ Participants Wit

Phase PHASE2 trial recruiting. Letetresgene autoleucel

New trial: Study to Evaluate Safety and Antitumor Activity of Lete-Cel (GSK3377794) in HLA-A2+ Participants Wit

Phase PHASE2 trial recruiting. Letetresgene autoleucel (Lete-Cel (GSK3377794))

New trial: Adoptive Transfer of Tumor Infiltrating Lymphocytes for Metastatic Uveal Melanoma

Phase PHASE2 trial recruiting. Tumor Infiltrating Lymphocytes (TIL)

New trial: Prospective Study of MAstectomy With Reconstruction Including Robot Endoscopic Surgery

Phase NA trial recruiting. Robotic or endoscopic nipple sparing mastectomy

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare tumor

Which specialists treat Rare tumor?

25 specialists and care centers treating Rare tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.