Neuroendocrine tumor of anal canal

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ORPHA:100082C21.1
Who is this for?
Show terms as
1FDA treatments13Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

BronchoconstrictionHP:4000007Carcinoid tumorHP:0100570TenesmusHP:0012702Bloody diarrheaHP:0025085Hypoactive bowel soundsHP:0030144Atypical pulmonary carcinoid tumorHP:0030446MelenaHP:0002249Increased serum serotoninHP:0003144Protracted diarrheaHP:0004385Facial telangiectasiaHP:0007380Bowel urgencyHP:0012701
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Mar 2026ZYNYZ: New indication approved
FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Zynyz

retifanlimab-dlwr· Incyte CorporationOrphan Drug
in combination with carboplatin and paclitaxel, for the first-line treatment of adult patients with inoperable locally recurrent or metastatic squamous cell carcinoma of the anal canal (SCAC); and as

in combination with carboplatin and paclitaxel, for the first-line treatment of adult patients with inoperable locally recurrent or metastatic squamous cell carcinoma of the anal canal (SCAC); and as a single agent, for the treatment of adult patients with locally recurrent or metastatic SCAC with disease progression on or intolerance to platinum-based chemotherapy

No actively recruiting trials found for Neuroendocrine tumor of anal canal at this time.

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Specialists

13 foundView all specialists →
BM
Brennan Spiegel, MD, MSHS
LOS ANGELES, CA
Specialist
PI on 1 active trial
SM
Scot C. Remick, MD
SCARBOROUGH, ME
Specialist
PI on 9 active trials
AP
Andre TC Chen, MD, PhD
Specialist
PI on 1 active trial
VM
Vivek Subbiah, MD
STANFORD, CA
Specialist
PI on 2 active trials
RM
Raymond Bergan, MD
CHICAGO, IL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine tumor of anal canal.

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Community

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Latest news about Neuroendocrine tumor of anal canal

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Caregiver Resources

NORD Caregiver Resources

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Mental Health Support

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine tumor of anal canal

Which specialists treat Neuroendocrine tumor of anal canal?

13 specialists and care centers treating Neuroendocrine tumor of anal canal are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.