MASS syndrome

Last reviewed

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ORPHA:99715OMIM:604308
Who is this for?
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28Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

9 events
Mar 2026OxiCLEAR (Oxiris Cytokines and Endotoxin Adsorption Rate) Study

Pauls Stradins Clinical University Hospital

TrialRECRUITING
Jan 2026Effects of Senobi Exercise & Aerobic Exercises in Polycystic Ovarian Syndrome

Riphah International University — NA

TrialENROLLING BY INVITATION
Jul 2025Inspire UAS High Apnea Hypopnea Index (AHI)/High Body Mass Index (BMI) Post-Approval Study

Inspire Medical Systems, Inc.

TrialRECRUITING
Sep 2024One Year of Velocity-based Resistance Training in Older People Living in Nursing Homes

University of Castilla-La Mancha — NA

TrialACTIVE NOT RECRUITING
Aug 2024Mechanisms of Brain-Heart Injury of Post-Intracranial Hemorrhage

Beijing Tiantan Hospital

TrialRECRUITING
Jan 2023Self-Management Support for Lung Cancer Patients With Cachexia

Changhua Christian Hospital — NA

TrialENROLLING BY INVITATION
Jun 2022Clinical Impact of Thoracic Scanographic Characteristics of Hematologic Malignancy Patients

University Hospital, Toulouse

TrialRECRUITING
Dec 2019Association of Body Fluid Distribution with Obstructive Sleep Apnea in Pregnant Women with Body Mass Index ≥ 40 Kg/m2

Samuel Lunenfeld Research Institute, Mount Sinai Hospital

TrialACTIVE NOT RECRUITING
May 2017Frailty Syndrome in Daily Practice of Interventional Cardiology Ward

Medical University of Silesia

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for MASS syndrome.

View clinical trials →

No actively recruiting trials found for MASS syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the MASS syndrome community →

Specialists

Showing 25 of 28View all specialists →
JM
Jannat Arshad, MS-PT
Lahore, Punjab Province
Specialist

Rare Disease Specialist

PI on 1 active trial
MM
Martine Laville, PhD, MD
Specialist
PI on 1 active trial
SM
Shaine A Morris, MD, MPH
Houston, Texas
Specialist

Rare Disease Specialist

PI on 2 active trials
TM
Thomas EDOUARD, MD
Montpellier
Specialist

Rare Disease Specialist

PI on 3 active trials
GF
George Sandor, MD, FRCPC
JAMAICA, NY
Specialist
PI on 1 active trial
JM
James E. Potts, MD
Specialist
PI on 1 active trial
CM
Cornelius van Breemen, MD
Specialist
PI on 1 active trial
CP
Celia CRETOLLE, MD, PhD
Specialist
PI on 1 active trial
MM
Mark A Creager, MD
BOSTON, MA
Specialist
PI on 2 active trials
SM
Stephen M Arpadi, MD, MS
NEW YORK, NY
Specialist
PI on 1 active trial
KM
Karen H. Lu, MD
HOUSTON, TX
Specialist
PI on 5 active trials
BP
Bryant Keirns, PhD
Specialist
PI on 1 active trial
KP
Kevin E Yarasheski, PhD
Specialist
PI on 2 active trials
JD
Jan Christensen, post doc
Specialist
PI on 1 active trial
MM
Mrinalini Balki, MD
Specialist
PI on 2 active trials
KK
Katerina Kotzampassi
Specialist
PI on 1 active trial
SP
Senol sentürk, PhD
Specialist
PI on 1 active trial
SD
Shih-Torng Ding, Ph D
Specialist
PI on 1 active trial
SP
Salimata Wade, Professor
Specialist
PI on 1 active trial
LP
Liang-Kung Chen, PhD
Specialist
PI on 1 active trial
JD
James Gibney, Dr
Specialist
PI on 3 active trials
RM
Robert J. Young, MD
Specialist
PI on 1 active trial
MP
Maria A Cebrià i Iranzo, PT, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to MASS syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

Open MASS syndromeForum →

No community posts yet. Be the first to share your experience with MASS syndrome.

Start the conversation →

Latest news about MASS syndrome

Disease timeline:

New recruiting trial: Inspire UAS High Apnea Hypopnea Index (AHI)/High Body Mass Index (BMI) Post-Approval Study

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Effects of Almonds in Glucose-intolerant Adults (AGAMEMNON)

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Ketoanalogues for Muscle Mass Loss in Nephrotic Syndrome

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Mechanisms of Brain-Heart Injury of Post-Intracranial Hemorrhage

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Clinical Impact of Thoracic Scanographic Characteristics of Hematologic Malignancy Patients

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Frailty Syndrome in Daily Practice of Interventional Cardiology Ward

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: OxiCLEAR (Oxiris Cytokines and Endotoxin Adsorption Rate) Study

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Effect of Bariatric Surgery Versus Medical Therapy on Metabolic Syndrome

A new clinical trial is recruiting patients for MASS syndrome

New recruiting trial: Impact of Supplemental Fiber on Gut and Vascular Health Related in Obesity Phenotypes

A new clinical trial is recruiting patients for MASS syndrome

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about MASS syndrome

Which specialists treat MASS syndrome?

25 specialists and care centers treating MASS syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.