AIDS wasting syndrome

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ORPHA:90081B22.2
Who is this for?
Show terms as
1FDA treatments13Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

Abnormal gonadotropin-releasing hormone concentrationHP:0500012
Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Nov 2026Building Opportunities for Nurturing Care to Enhance Child Development in Eastern and Southern Africa

University of Washington — NA

TrialNOT YET RECRUITING
Jun 2025A Trial Testing a Two-way SMS Platform to Recognize and Prevent Wasting Among HIV-infected and HIV-exposed Uninfected Children in Kenya

University of Washington — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Serostim

Somatropin for injection· EMD Serono, Inc.

indicated for the treatment of HIV patients with wasting or cachexia to increase lean body mass and body weight, and improve physical endurance

No actively recruiting trials found for AIDS wasting syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the AIDS wasting syndrome community →

Specialists

13 foundView all specialists →
JM
Jan Fourie, MD
Specialist
PI on 1 active trial
SM
Steven Grinspoon, MD
BOSTON, MA
Specialist
PI on 3 active trials
JM
Joseph A Kovacs, M.D.
Specialist
PI on 6 active trials
JF
James A Berkley, FRCPCH
Specialist
PI on 1 active trial
EP
Elizabeth Svanbert, MD, PhD
Specialist
PI on 1 active trial
CM
Christos Mantzoros, MD
BOSTON, MA
Specialist
PI on 1 active trial
KP
Kirkby Tickell, PhD
Specialist
PI on 1 active trial
AP
Arianna R Means, PhD
Specialist
PI on 1 active trial
DG
Dr.Marie Gelato
Specialist
PI on 1 active trial
BP
Benson Singa, PhD
Specialist
PI on 1 active trial
KP
Kevin E Yarasheski, PhD
Specialist
PI on 2 active trials
SM
Sherwood Gorbach, MD
Specialist
PI on 1 active trial
AM
Abby Shevitz, MD
Specialist
PI on 1 active trial1 AIDS wasting syndrome publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources
Serostim(Somatropin for injection)EMD Serono, Inc.

Travel Grants

No travel grants are currently matched to AIDS wasting syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about AIDS wasting syndrome

Disease timeline:

New recruiting trial: A Trial Testing a Two-way SMS Platform to Recognize and Prevent Wasting Among HIV-infected and HIV-exposed Uninfected Children in Kenya

A new clinical trial is recruiting patients for AIDS wasting syndrome

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about AIDS wasting syndrome

Which specialists treat AIDS wasting syndrome?

13 specialists and care centers treating AIDS wasting syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for AIDS wasting syndrome?

1 patient support program are currently tracked on UniteRare for AIDS wasting syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.